Clinic Name: Rett and Related Disorders Clinic Medical Directors: Art Beisang, MD & Tim Feyma, MD Clinic Address: 200 University Ave. East, St. Paul, MN 55051 Clinic Phone: (651) 228-6455 Clinic Email: [email protected] Part of the IRSF Center of Excellence Network
Visit Biobanking of Rett Syndrome and Related Disorders Website The purpose of this study is to advance understanding of the natural history of Rett syndrome (RTT), MECP2-duplication disorder (MECP2 Dup), RTT-related disorders including CDKL5, FOXG1, and individuals with MECP2 mutations who do not have RTT. Samples with DNA will be collected. This study is being … Read More
Ashley Dahms, volunteer Family Empowerment Representative, [email protected] 1-763-607-9963 Matt Dahms, volunteer Family Empowerment Representative, [email protected] 1-763-222-4995 Connie Lindberg, volunteer Family Empowerment Representative, [email protected] 1-612-247-3210
Samantha Brant – Family & Community Engagement Manager, International Rett Syndrome Foundation [email protected] 1-913-221-8157