For other clinical trials, please visit clinicaltrials.gov. You can also download "A Participant's Guide to Drug Research in Rett Syndrome"
Pharmacological Interventional Clinical Trials
Evaluation of the Efficacy, Safety, and Tolerability of Sarizotan in Rett Syndrome With Respiratory Symptoms
This study evaluates Sarizotan in reducing respiratory abnormalities in Rett syndrome.
click HERE for a PDF flyer and HERE for more information
Observational Clinical Studies
Natural History Study
This study will gather as much data as possible about children and adults with Rett syndrome to stimulate more clinical research and better prepare us for future clinical trials.
click HERE for more information
Biobanking of Rett Syndrome and Related Disorders
The purpose of this study is to advance the understanding of Rett syndrome and develop biomarkers of disease status, clinical severity, or responsiveness to therapeutic intervention.
Non-Pharmaceutical Clinical Research
Visual Attention to Print in Children with Rett Syndrome
Auditory Assessment of Language and Learning
Experiences of Parents of children with Special Needs/Disabilities
click HERE for more information STUDY CLOSED 12/6/16
Improving Upper Extremity Motor Skills in Persons with Rett Syndrome Using Virtual Reality Computer Games
Rett syndrome: Tailoring treatment based on Communication needsclick HERE for more information
Communication services and support for individuals with Rett syndrome: a survey for families
click HERE for more information click HERE to see the survey
Assessing Oculomotor Control in Rett Syndrome Using Integrated EEG & Eye Tracking Technology