Wyoming

Family Empowerment Representatives

Family Empowerment Representatives are volunteers who provide emotional support, information and resources to families affected by Rett syndrome. Contacting them should be your first step.

National Family Empowerment Representative

Samantha Brant – Family & Community Engagement Manager, Rettsyndrome.org
sbrant@rettsyndrome.org  1-913-221-8157

Family Empowerment Representative

Myrna Johnson, volunteer Family Empowerment Representative
timandmyrna@gmail.com  1-307-214-4979

Treatment and Research Centers

Your child may be able to participate in studies and trials to advance treatment and knowledge of Rett syndrome. There are clinics specializing in Rett syndrome that can help you provide Rett-specific care for your child.

Clinical Trials

Rett syndrome clinical trials are available at various stages in the process. Please visit our Clinical Trial page for current enrollment status.

Clinics

Rett Clinic at Children's Hospital Colorado

Visit Rett Clinic at Children’s Hospital Colorado Website
The Rett Clinic at Children’s Colorado was established in 2011 thanks to a generous gift from the Rocky Mountain Rett Association. Many doctors and specialists come together to provide coordinated care and convenience for the child and family (about 14 providers are at the first appointment).

The Rett Clinic is located in the Multidisciplinary Clinic at Children’s Colorado, which means that the doctors and specialists come directly to the patient and family (and not the other way around) to provide streamlined care for children with complex needs.  The clinic is led by Director, Dr. Tim Benke. For appointments, contact Tristen Dinkel, RN, Clinic Coordinator at rettclinic@childrenscolorado.org or call 720-777-4363.

Watch the Colorado Clinic video.

State Agencies & Resources

Local Service Agencies

Developmental Disabilities Division of the Department of Health

Visit Developmental Disabilities Division of the Department of Health Website
bhdmail@wyo.gov

UPLIFT Wyoming

Visit UPLIFT Wyoming Website
UPLIFT Wyoming provides advocacy and support for families of children with complex behavioral health challenges and other special health care needs.

Wyoming Institute for Disabilities (WIND)

Visit Wyoming Institute for Disabilities (WIND) Website
Wyoming Institute for Disabilities (WIND) assists individuals with developmental and other disabilities and their families by promoting and supporting full community inclusion, community membership, independence, productivity and social participation. WIND provides early intervention activities, training and technical assistance to professionals, research on disability issues and is home to the state assistive technology program and accessible instructional material coordinating center.

Accessible Tools for Leadership and Advocacy Success (ATLAS)

Visit Accessible Tools for Leadership and Advocacy Success (ATLAS) Website
Accessible Tools for Leadership and Advocacy Success (ATLAS) is a toolkit created by Genetic Alliance, Parent to Parent USA, and Family Voices that provides individuals with special healthcare needs and their families with tools and strategies to advocate for whatever they may need. Resources are grouped by category on the Advocacy ATLAS landing page.

State Medicaid

Medicaid/CHIP Application

Visit Medicaid/CHIP Application Website
This is the official website used to apply for Wyoming Department of Health Medicaid and Kid Care CHIP programs.

Supports Waiver and Comprehensive Waiver

Visit Supports Waiver and Comprehensive Waiver Website
1-800-510-0280
The website has many downloads with information about both waivers.  The Application Guide details the application process.

Early Intervention

Early Intervention and Education Program

Visit Early Intervention and Education Program Website
1-307-777-6972
Wyoming Department of Health Early Intervention and Education Program ensures that services are provided to eligible children birth through 5 with Developmental Delays and disabilities.

Education

Special Education Information 

Visit Special Education Information Website
1-307-777-3530
kodi.gerhold@wyo.gov 

Conservatorship

Guardianship and Conservatorship Guide for Wyoming

View or Download the Guardianship and Conservatorship Guide for Wyoming

Handicap Placard

If you have favorite resources to share with others, please email that information and your experience to areed@rettsyndrome.org.

Legal Resources & Information

Protection & Advocacy System, Inc.

Visit Protection & Advocacy System, Inc. Website
1-307-632-3496

Additional Resources

Rocky Mountain Rett Association

Visit Rocky Mountain Rett Association Website
The Rocky Mountain Rett Association (RMRA) was founded for three reasons; to fund research for the development of treatments & cures for Rett Syndrome and related MeCP2 disorders, to support families suffering from Rett, and to raise awareness for Rett Syndrome.

Rocky Mountain Rett Association
PO Box 1294
Morrison, Colorado 80465
(720) 234-7673
info@rmrett.org