SPECIAL DAY: THURSDAY – The neuro-anatomy and circuitry assets of our children with Rett syndrome can change over time. Dr. Diener will explain how children can benefit from a well-developed, enriched therapy program. Dr. Diener will also share about her research project on understanding how Virtual Reality technology plays a productive role in OT and functional hand use.
Presenter bio: Dr. Pam Diener is a highly respected neuroscientist and clinical researcher.
WHEN: Saturday, April 25, 2020
TIME: 8:30 AM
LOCATION: Busse Woods, Grove 28
Elk Grove Village, IL
Contact info: Diane Ross (firstname.lastname@example.org).
From the serious runner to the recreational runner, to family members and friends of all ages the Run For Rett is an event you don’t want to miss. Make a difference in the life of those affected by Rett Syndrome and join us for the Run For Rett 5K Run/Walk & 1 Mile Fun Run.
The Shirley family is hosting the 2nd Annual Great Rett Shootout.
Friday, May 1st.
Come out and break some clays as they raise funds on behalf of their daughter Dayton and many others affected by Rett syndrome.
Registration, sponsorships and donation options are listed below. For any questions, please contact Kent & Amanda Shirley at email@example.com. Be sure to follow their Facebook page for event updates: https://www.facebook.com/TheGreatRettShootout/.
13th Annual St Louis Strollathon
Saturday, May 2th, 2020
Registration: 9:00am, Stroll: 10:00am
Location: JCC, 2 Millstone Campus Dr., St. Louis, MO 63146
4th Annual Iowa Strollathon
Saturday, May 2th, 2020
Location: Kinzler Construction Services, 700 SE Oralabor Rd, Ankeny IA 50021
8th Annual Charamella Golf Tournament
Date: May 11, 2020
Time: 11am – 7pm
Location: Westover Country Club
401 S Schuylkill Ave
Norristown, PA 19403
Mark Charamella was the father of a daughter with Rett syndrome. He did everything he could to make her life better. It is in his honor that his family and friends gather to celebrate a life well lived and give to a cause that was close to his heart.
Award-winning neuroscientist and Rett syndrome expert Dr. Alysson Muotri, Director of the Stem Cell Program at the University of California at San Diego, will share how he and his lab are pushing the limits of science in the name of your child with Rett syndrome.
Dr. Mutori’s lab uses animal models, neural stem cells, human and other primates’ pluripotent cells, and several tools to investigate brain development, evolution, and neural disorders, including Rett syndrome.
Dr. Muotri has received recent headline attention for his experiment to study the impact of microgravity on human brain development, research which could improve disease modeling for neurodegenerative and developmental disorders as well as give clues into the future of humanity in space.
Questions and comments submitted in advance will be addressed, and there will be plenty of time for write-in questions during the session.
12th Annual Michigan Strollathon
Date: Sunday, May 17, 2020
Location: Drake Sport Park, 6801 Drake Rd, West Bloomfield Township, MI 48322
Registration: 10:00am, Stroll: 11:00am
East Coast Rettsyndrome.org Ed Day
June 6, 2020
Baltimore, MD (in partnership with Kennedy Krieger Institute )
Our Ed Days are for everyone wanting to connect with experts in the field of Rett syndrome especially families, caregivers, educators, clinicians, and therapists. Participants will enjoy a rich and informative day of topics and discussions covering research updates, medical and therapeutic intervention strategies, communication strategies, and more.