Jan
28
Sat
Siera’s 35th Birthday Bash for IRSF
Date: Saturday, January 28th, 2023 Time: 5pm-11pm Location: St. Louis Moose Lodge 1566, 811 Michigan Ave, St Louis MI 48880 Come help us celebrate Siera’s 35th birthday while raising funds for IRSF. Enjoy an evening of entertainment, dinner & cash bar, live & silent auction and more! All ages welcome. To RSVP, please contact Lisa Rushin at: 989-285-5994. Unable to join but want to donate- you may do so here: https://rettgrassrootevents.funraise.org/fundraiser/lisa-rushin All proceeds to benefit IRSF.![](https://www.rettsyndrome.org/wp-content/uploads/Seira-Bday-2023-Flyer.jpg)
Categories: Special Events - General
Apr
22
Sat
![](https://www.rettsyndrome.org/wp-content/uploads/Run-for-Rett.png)
Categories: Special Events - Run/Walk
Apr
24
Mon
**RESCHEDULED**
Date: Monday, April 24, 2023 Time: Registration 7:00 am ET; First flight tee off 8:30 am ET Location: Hillcrest Golf & Country Club (4011 N Boston Ave, Lubbock, TX 79415) Continental breakfast items available and lunch will be provided We invite you to take part in the First Annual Hannah’s Hope Golf Tournament rescheduled for April 24, 2023 at Hillcrest Country Club. This tournament will benefit the International Rett Syndrome Foundation in honor of Hannah Hooks. The inspiration behind our tournament is 10-year-old Hannah Hooks. Hannah lives in Lubbock and is in 5th grade at Lubbock-Cooper West Elementary. Hannah was born with a rare disease called Rett Syndrome. Rett syndrome is a rare genetic neurological disorder that leads to severe impairments, affecting nearly every aspect of the child’s life. In April of 2022 IRSF hosted their National Science and Family Summit and presented an update on a treatment for Rett Syndrome. Rett Syndrome has been treated in mice and there are multiple clinical trials going on throughout the world to bring a cure to the males and females living with Rett. A treatment for Rett will also lead to breakthroughs in many other diseases and disorders. In order to continue research, organizations like International Rett Syndrome Foundation need funds to contribute to the many companies who are seeking a treatment. INFORMATION & REGISTRATION Categories: Special Events - Golf Tournaments
Apr
28
Fri
![](https://www.rettsyndrome.org/wp-content/uploads/GreatRettShootout.jpg)
Categories: homepage Special Events - General
May
8
Mon
![](https://www.rettsyndrome.org/wp-content/uploads/Charamella-Golf_Website.png)
![](https://www.rettsyndrome.org/wp-content/uploads/Charamella-Golf-Logo.jpeg)
Categories: homepage Special Events - Golf Tournaments
Jun
9
Fri
![](https://www.rettsyndrome.org/wp-content/uploads/Rip-it-for-Rett_Website-Event-1400-×-613-px.png)
Categories: homepage Special Events - Golf Tournaments
Jul
15
Sat
![](https://www.rettsyndrome.org/wp-content/uploads/Website-Event-Calendar.png)
Categories: homepage Special Events - General
Jul
31
Mon
![](https://www.rettsyndrome.org/wp-content/uploads/Norcina-Header.png)
Categories: Special Events - Golf Tournaments
Sep
9
Sat
![](https://www.rettsyndrome.org/wp-content/uploads/Fill-Your-Freezer_WebsiteC.png)
Categories: homepage Special Events - General
Sep
25
Mon
![](https://www.rettsyndrome.org/wp-content/uploads/Goals-for-Gracie-23_website-event.png)
Categories: homepage Special Events - Golf Tournaments
Oct
16
Mon
![](https://www.rettsyndrome.org/wp-content/uploads/On-the-Ridge-for-Rett-calendar-image.png)
Categories: homepage Special Events - Golf Tournaments
Oct
28
Sat
Oct 28 @ 8:00 pm – 9:00 pm
![](https://www.rettsyndrome.org/wp-content/uploads/Raise-a-Glass-Website-Header.png)
Categories: homepage Special Events - General
May
13
Mon
![](https://www.rettsyndrome.org/wp-content/uploads/Golf-Event_FB-Cover.png)
![](https://www.rettsyndrome.org/wp-content/uploads/Charamella-Golf-Logo.jpeg)
Categories: homepage Special Events - Golf Tournaments
Jul
8
Mon
![](https://www.rettsyndrome.org/wp-content/uploads/Goals-Fore-Gracie-PNG.png)
![](https://www.rettsyndrome.org/wp-content/uploads/Family-photo.jpeg)
Categories: homepage Special Events - General
Jul
13
Sat
Date: Saturday, July 13, 2024 Time: 12-4 p.m. Location: IBEW Local 1 (5850 Elizabeth Ave, St Louis, MO 63110) Channel your inner rockstar in POUND® - an exhilarating full body workout inspired by the infectious, energizing, and sweat-dripping fun of playing the drums. Designed for all fitness levels and easily modifiable, POUND® provides the perfect atmosphere for rockstars of all ages and abilities to let loose! Come rock out workout, enjoy refreshments, vendors, a silent auction, and more! Learn More & Register Today!
Categories: homepage Special Events - General
Jul
20
Sat
Date: Saturday, July 20, 2024 Time: 2-5 p.m. ET Location: Henmick Farm & Brewery (4380 N Old State Rd, Delaware, OH 43015)
Join us for this FREE, family-friendly event in support of finding a cure for Rett syndrome. We will have raffles, a silent auction, a live auction (with items from our daughters living with Rett), live music, food trucks, a kids' area with crafts, games, and music! INFORMATION & REGISTRATION
![](https://www.rettsyndrome.org/wp-content/uploads/FFAC_Logo_2024-2.png)
Categories: homepage Special Events - General
Sep
21
Sat
Date: Saturday, September 21, 2024 Time: TBD Location: Olathe Community Center (1205 E Kansas City Rd, Olathe, KS 66061) More information coming soon!
Categories: homepage Special Events - General
Oct
11
Fri
Date: Friday, October 11, 2024 Time: TBD Location: Imperial, MO More information coming soon!
Categories: homepage Special Events - General
Oct
14
Mon
Date: Monday, October 14, 2024 Time: TBD Location: Lenexa, KS Event Chair: Haley Douglass and Sam, Katie, & Parthy Evans More information coming soon!
Categories: homepage Special Events - Golf Tournaments
Nov
10
Sun
Date: Sunday, November 10, 2024 Time: 12 p.m. ET Location: Watermark Country Club (1600 Galbraith Ave SE, Grand Rapids, MI 49546) More information coming soon!
Categories: homepage Special Events - General
Date: Sunday November 10, 2024 Time: 5-9 p.m. CT Location: Houston Country Club (1 Potomac Dr, Houston, TX 77057) More information coming soon!
Categories: homepage Special Events - General
May
17
Sat
Date: Saturday, May 17, 2025 Time: 4 p.m. ET Location: The Grove in Newport, ME More information coming soon!
Categories: homepage Special Events - General
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