Events

Sep
21
Sat
Michigan Strollathon @ Marshbank Park
Sep 21 @ 10:00 am – 1:00 pm
  Date: Saturday, September 21, 2024 Time: 10:00 a.m. - 1 p.m. ET Location: Marshbank Park (2805 Hiller Road, West Bloomfield, MI 48324) Event Chairs: Lisa Fenberg & Kate Ficano (Contact Email) REGISTER TODAY! Make sure to follow the event on Facebook to stay up to date! The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised nearly $17M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.
Raise a Glass Against Rett – Kansas City @ Olathe Community Center
Sep 21 @ 5:00 pm – 8:00 pm
Date: Saturday, September 21, 2024 Time: 4-7 p.m. CT Location: Olathe Community Center (1205 E Kansas City Rd, Olathe, KS 66061) Raise a glass to a Saturday well-spent! Join us for this FREE, family-friendly event in support of finding treatments and a cure for Rett syndrome. We will have 50/50 raffle, a silent auction, DJ, food truck, Dunk Tank, a kids' area with crafts, games, and face painting! INFORMATION & REGISTRATION
Sep
28
Sat
Nebraska Strollathon @ Yanney Park
Sep 28 @ 12:00 pm
Date: Saturday, September 28, 2024 Time: 11 a.m. CT Location: Yanney Park (2020 W 11th St, Kearney, NE 68845) Event Chairs: Elly Gullion REGISTER TODAY! The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised nearly $17M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.
Oct
5
Sat
New Jersey Strollathon @ Thompson Park
Oct 5 @ 10:00 am – 2:00 pm
Date: Saturday, October 5, 2024 Time: 10 a.m. - 2 p.m. ET Location: Thompson Park (805 Newman Springs Rd, Lincroft, NJ 07738) Event Chairs: Leslie Greenfield & Allison Fitzgerald LEARN MORE & REGISTER The Strollathon is a nationwide IRSF fundraiser that brings together local communities to raise critical funds towards treatment and a cure for Rett syndrome. For more than 20 years, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $17M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.
Maryland Strollathon @ Matthew Henson State Park
Oct 5 @ 12:00 pm – 4:00 pm
Date: Saturday, October 5th, 2024 Time: 12:00 p.m.-4 p.m. ET Location: Matthew Henson State Park (13421 Georgia Ave, Silver Spring, MD 20906) Event Chairs: Toni Moore & James Borris, Daniel Jackson, and Cathy Borris-Hale LEARN MORE & REGISTER The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.
Oct
6
Sun
Minnesota Strollathon @ Savage Environmental Learning Center (ELC)
Oct 6 @ 1:45 pm – 5:00 pm
Date: Sunday, October 6th, 2024 Time: 12:45-4pm CT Location: Savage Environmental Learning Center (13550 Dakota Ave, Savage, MN 55378) Event Chairs: Mary Kallstrom (Contact Email) REGISTER TODAY! Make sure to follow the event on Facebook to stay up to date! The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised nearly $17M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.
Oct
11
Fri
Warrior William Fishing Tournament @ Red Oak Resort & RV Park
Oct 11 all-day
Date: Friday, October 11, 2024 Time: TBD Location: Imperial, MO
Oct
16
Wed
Rhinegeist Beer for Humans Pint Night @ Rhinegeist Brewery
Oct 16 all-day
Date: Wednesday, October 16, 2024 Time: TBD Location: Rhinegeist Brewery (1910 Elm St, Cincinnati, OH 45202) Sip for a cause! Each month, Rhinegeist highlights four local non-profit organizations that are brewing positive change in our community. Grab a pint on Wednesdays from 5-8 pm, receive a token with each pint purchase, explore each organization, and vote for your non-profit of choice by placing your token in their designated dropbox! You may also make a monetary donation in any dropbox. At the end of the month, each organization receives a donation based upon the amount of “votes” they receive, while the organization with the most votes receives a bonus. So grab your pals, grab a pint, and support our local non-profits! MORE INFORMATION
Oct
19
Sat
St. Louis Strollathon @ The JCC - St. Louis
Oct 19 @ 2:00 pm
Date: Saturday, October 19th, 2024 Time: 1pm CT Location: The JCC - St. Louis (2 Millstone Campus Dr. St. Louis, MO 63146) Event Chairs: Joyce Opinsky, Amy Kreher, & Amanda Sommer (Contact Email) REGISTER TODAY! Make sure to follow the event on Facebook to stay up to date! The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised nearly $17M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.
Oct
24
Thu
RettEd Webinar | Epilepsy Treatments in Rett Syndrome
Oct 24 @ 1:00 pm – 2:00 pm
Date: Thursday, October 24th Time: 1-2 pm ET REGISTER NOW Epilepsy Treatments in Rett Syndrome The International Rett Syndrome Foundation (IRSF) invites you to this live RettEd session with a goal of educating families on an approach to the treatment of epilepsy in Rett syndrome. Guest Speaker: Robin Ryther, M.D., Ph.D., Associate Professor, Pediatric Epilepsy; Director, Rett Spectrum Clinic; Division of Pediatric and Developmental Neurology; Pediatric Epilepsy Center at Washington University and St. Louis Children's Hospital Department of Neurology This session will include a discussion of medication options but also non-medication options including special diets, surgical options, and supplements such as CBD oil. Dr. Ryther will also review special circumstances specific to Rett Syndrome to be considered. This information is appropriate for patients with Rett syndrome of all ages. Thank you to our RettEd Empowerment Sponsors, presenting sponsor Acadia Pharmaceuticals and diamond sponsor Taysha Gene Therapies, for helping IRSF provide educational resources and support to families affected by Rett syndrome. Medical Disclaimer: All information, content, and material provided in this webcast is for informational purposes only and is not intended to serve as a substitute for the consultation, diagnosis, and/or medical treatment of a qualified physician or healthcare provider. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition.
Oct
26
Sat
So Cal Strollathon
Oct 26 @ 3:00 pm – 7:00 pm
Date: Saturday, October 26th, 2024 Time: 12-4 p.m. PT Location: Whittier, CA Event Chair: Sherri Brady (Contact Email) LEARN MORE & REGISTER Make sure to follow the event on Facebook to stay up to date! The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.
Nov
2
Sat
Florida Strollathon @ Space Coast Field of Dreams
Nov 2 @ 10:30 am
Date: Saturday, November 2, 2024 Time: Registration starts at 10:30 a.m.  |  Stroll starts at 1:00 p.m. Location: West Melbourne, FL Event Chair: Henry Perez (Contact Email) REGISTER TODAY! Make sure to follow the event on Facebook to stay up to date! The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.
Nov
10
Sun
Royal Rett Tea Party @ Watermark Country Club
Nov 10 @ 12:30 pm
Date: Sunday, November 10, 2024 Time: 12:30 p.m. ET Location: Watermark Country Club (1600 Galbraith Ave SE, Grand Rapids, MI 49546) Join us for a magical afternoon honoring some of Michigan's Rett Royalty and featuring Disney characters from Olivia Grace & Company. The event includes photo and autograph opportunities plus a special gift for our princes and princesses. A fancy tea party luncheon is included with your ticket purchase.  Cash bar optional. RESERVE YOUR SEAT!  
Raise a Glass for Rett – Houston @ Houston Country Club
Nov 10 @ 6:00 pm – 10:00 pm
Date: Sunday November 10, 2024 Time: 5-9 p.m. CT Location: Houston Country Club (1 Potomac Dr, Houston, TX 77057) Get Ready to Raise your Glass! Join us for the 5th Annual Houston Raise a Glass for Rett Gala brought to you by the International Rett Syndrome Foundation (IRSF) and Johnson Supply. This year we will be at the Houston Country Club on Sunday, November 10th. We hope to exceed our goal of raising $185,000 for IRSF, and we’re grateful for your interest in supporting this important event. 
Nov
16
Sat
IRSF RettEd Day @ CHOP
Nov 16 @ 9:00 am – 5:00 pm
Date: Saturday, November 16, 2024 Time: 9:00 a.m. - 5 p.m. ET (registration opens at 8:00a) Location: Children's Hospital of Philadelphia Our RettEd Days are for everyone wanting to connect with experts in the field of Rett syndrome especially families, caregivers, educators, clinicians, and therapists. Participants will enjoy a rich and informative day of topics and discussions covering research updates, medical and therapeutic intervention strategies, communication strategies, and more. LEARN MORE & REGISTER
May
17
Sat
Enchanted Dreams Fantasy Gala for Rett @ The Grove
May 17 @ 4:00 pm
Date: Saturday, May 17, 2025 Time: 4 p.m. ET Location: The Grove in Newport, ME More information coming soon!