Jan
8
Tue
Jan 8 @ 1:00 pm – 2:30 pm
![](https://www.rettsyndrome.org/wp-content/uploads/DinkelTristen-2015_circlCrop.png)
Categories: Education Slider Webinar
Feb
12
Tue
![](https://www.rettsyndrome.org/wp-content/uploads/Steve_Kaminsky.png)
Categories: Education Slider Webinar
Mar
12
Tue
![](https://www.rettsyndrome.org/wp-content/uploads/Glaze-2018-photo_circlecrop.png)
Categories: Education Slider Webinar
Apr
8
Mon
![](https://www.rettsyndrome.org/wp-content/uploads/Mickie-and-Ellie-McCool.jpg)
Categories: Education Slider Webinar
Apr
12
Fri
Categories: Ed Day Education Slider
Apr
13
Sat
![](https://www.rettsyndrome.org/wp-content/uploads/Screen-Shot-2019-03-11-at-8.31.19-PM.png)
![This image requires alt text, but the alt text is currently blank. Either add alt text or mark the image as decorative.](https://www.rettsyndrome.org/wp-content/plugins/wp-accessibility/imgs/alt-missing.png)
Categories: Special Events - Run/Walk
Apr
27
Sat
Hosted with Gillette Children’s Specialty Healthcare Rett Syndrome Services Clinic - St. Paul, MN (Regional Association Partner)
Categories: Ed Day Education Slider
Apr 27 @ 8:00 am – 11:00 am
Categories: Special Events - Run/Walk
May
5
Sun
5K Run, 1 Mile Fun Run & 1 Mile Walk or Stroll
To Benefit Rettsyndrome.org
For more information, please email Live Rett Free. You may also call Amanda at (419) 306-4234 or Karen at (419) 957-3875. Download the Offline Registration Form to register, sponsor or make a donation by check. Categories: Special Events - Run/Walk
May
11
Sat
Categories: Special Events - Meetings/Symposiums
![](https://www.rettsyndrome.org/wp-content/uploads/may-2019-retted_updated.jpg)
Categories: Education Slider Webinar
May
18
Sat
Categories: Ed Day Education Slider
![Sesame Place Dinner & Park @ Sesame Place](https://www.rettsyndrome.org/wp-content/uploads/Screen-Shot-2019-04-27-at-8.17.48-PM.png)
Enjoy an accessible family friendly park for 2 days with a private dinner on Saturday. Tickets are $50/person; this is at least a $70 savings! Plan your Accessible Seasame Place Day!
Dinner:
Date: Saturday, May 18 Time: 6:00 - 7:00 pm Where: Abby's Garden Grille After 5:30 pm parking is free Tickets must be pre-purchased by Wednesday, May 8th 2019 and are non-refundable. Tickets include: Private after-hours dinner with a Sesame character appearance, and 2-day park passes to be used on Saturday, May 18th and Sunday, May 19th. The park is less than a mile away from the Rett Ed Day at Sheraton Bucks County. Parking at Sesame Place is $27 or $23 based on the lot. The Sheraton offers free parking and free non-ADA shuttle. For more information contact Paige Nues [email protected] or with questions to Erin Cassano (local Rett parent) [email protected] Categories: Special Events - Non-Fundraising Events
Jun
11
Tue
![](https://www.rettsyndrome.org/wp-content/uploads/suzi3_170crop.png)
Categories: Previous Webinars Webinar
Jun
22
Sat
Rettsyndrome.org Ed Day hosted by TBD – Boston, MA
Jul
9
Tue
![](https://www.rettsyndrome.org/wp-content/uploads/Skinner-and-Warren.png)
Categories: Education Slider Webinar
Jul
20
Sat
Hosted by UCSF Benioff Children’s Hospitals Katie’s Clinic for Rett and Related Disorders, a Rettsyndrome.org Clinical Research Center of Excellence
Intended for anyone wanting to connect on issues important to Rett syndrome families, especially clinical trial information and emphasis on the enriched environment. Attendees will enjoy a fun camp-style day of discussion and “living education” activities that will cover: research updates, medical and therapeutic interventions, and communication strategies.WHEN | Saturday, July 20, 2019
WHERE | Camp Arroyo, 5555 Arroyo Road, Livermore, CA 94550
TIME | 9:00a.m. - 4:00p.m. (please arrive at 8:30a.m.)
Fee: $10/per person. Diagnosed children are FREE.
Includes: Presentations, hands-on activities and demonstrations, interactive panel discussion, continental breakfast and lunch. We will have an onsite photographer for family portraits for RSO awareness and education materials. If you choose to participate, photos will be shared with you at no charge. REGISTER NOW!Aug
17
Sat
RUNNING FOR RETT SYNDROME 5K
Saturday, August 17, 2019 Registration – 8:30am Run Starts – 9:00am Entry Fee – $20.00 Inquiries – Leah(507)251-4815 Registration & Information Categories: Special Events - Run/Walk
Aug
27
Tue
![](https://www.rettsyndrome.org/wp-content/uploads/Sarika-and-Marie.jpg)
Categories: Education Slider Webasts
Sep
10
Tue
Sep 10 @ 1:00 pm
![](https://www.rettsyndrome.org/wp-content/uploads/huda-zoghbi-2017.jpg)
Categories: Education Slider Webinar
Sep
27
Fri
![](https://www.rettsyndrome.org/wp-content/uploads/076c213b9108d8c3c48a6f876f8f0b64.png)
Categories: Special Events - Meetings/Symposiums
Sep
28
Sat
![](https://www.rettsyndrome.org/wp-content/uploads/076c213b9108d8c3c48a6f876f8f0b64.png)
Categories: Special Events - Meetings/Symposiums
Oct
5
Sat
![RRAA 2018 Launch](https://www.rettsyndrome.org/wp-content/uploads/events-header-760x425.png)
Gulf Coast Endurance Ride
Saturday, October 5th from Biloxi MS to Pensacola FL. If you’re up for a challenging ride, consider joining KC Byers and friends for a century ride. KC is the creator of the Rett Ride Across America and step-dad to Katelyn with Rett. Last year he completed his second 2,600 mile ride across the country. Here are the details for this year’s Endurance Ride: Start: Mary Mahoneys, 110 Rue Magnolia, Biloxi, MS 39530 Finish: WEAR TV, 4990 Mobile Highway, Pensacola FL 32506 114 mile with volunteer sag support & police escorts Join for any length of the ride. Here are the multiple lag points where you can join. Lag Point #1 (120 Miles): Meet at Mary Mahoneys, 110 Rue Magnolia, Biloxi, MS 39530 Lag Point #2 (90 miles): Meet at US Hwy 90 at the Missippi/Alabama line Lag Point #3 (70 miles): Meet at Raceway 6709, 5455 Government Bvld, Mobile AL 36619 (Theodore exit junction I-10 and US 90) Lag Point #4 (45 miles): Meet at Eastern Shore Bike Shop, 845 US-90 Ste 102, Daphne, AL 36526 Lag Point #5 (20 miles): Maw Maw’s Country Market, 26010 US Hwy 90, Robertsdale, AL Junction 90 & 87 END at: WEAR Channel 3, 4990 Mobile Hwy, Pensacola Fl Ride in style with your RRAA gear- select a jersey, cycle shorts or both. Shop here. Register TODAY! Categories: Special Events - Run/Walk
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