Apr
6
Sat
Categories: Special Events - General
Apr
13
Sat
Categories: Special Events - Run/Walk
All-You-Can-Eat Buffest & Open Bar and Silent Auction
Categories: Special Events - General
Apr
27
Sat
Apr 27 @ 8:00 am – 11:00 am
Categories: Special Events - Run/Walk
May
4
Sat
Registration: 9:00am, Stroll: 10:00am Event Chairs: Joyce Opinsky & Amy Kreher
Categories: Special Events - Strollathons
Co-Chairs: Kelly Zwald, Megan Hill Mitchum, Libby Stromer
Categories: Special Events - Strollathons
May
5
Sun
5K Run, 1 Mile Fun Run & 1 Mile Walk or Stroll
To Benefit Rettsyndrome.org
For more information, please email Live Rett Free. You may also call Amanda at (419) 306-4234 or Karen at (419) 957-3875. Download the Offline Registration Form to register, sponsor or make a donation by check. Categories: Special Events - Run/Walk
Registration: 10:00am, Stroll: 11:00am
Categories: Special Events - Strollathons
May
11
Sat
Categories: Special Events - Meetings/Symposiums
May
17
Fri
Categories: Special Events - General
Jun
1
Sat
Categories: Special Events - Strollathons
Jun
15
Sat
Categories: Special Events - General
Categories: Special Events - General
Jun
22
Sat
Rettsyndrome.org Ed Day hosted by TBD – Boston, MA
Jul
20
Sat
Hosted by UCSF Benioff Children’s Hospitals Katie’s Clinic for Rett and Related Disorders, a Rettsyndrome.org Clinical Research Center of Excellence
Intended for anyone wanting to connect on issues important to Rett syndrome families, especially clinical trial information and emphasis on the enriched environment. Attendees will enjoy a fun camp-style day of discussion and “living education” activities that will cover: research updates, medical and therapeutic interventions, and communication strategies.WHEN | Saturday, July 20, 2019
WHERE | Camp Arroyo, 5555 Arroyo Road, Livermore, CA 94550
TIME | 9:00a.m. - 4:00p.m. (please arrive at 8:30a.m.)
Fee: $10/per person. Diagnosed children are FREE.
Includes: Presentations, hands-on activities and demonstrations, interactive panel discussion, continental breakfast and lunch. We will have an onsite photographer for family portraits for RSO awareness and education materials. If you choose to participate, photos will be shared with you at no charge. REGISTER NOW!Jul
28
Sun
Categories: Special Events - General
Aug
8
Thu
Casting 4 A Cure is a loose band of compadres and compatriots who fly fish and fundraise to find a cure for Rett Syndrome. We have pulled together many of the fly fishing industry's leaders and they have taken on the cause like it is their own. Come join us at one of the events or become a sponsor and help the thousands of girls affected by this crippling neurological disorder. 3 day single entry - $2,500.00 3 day team entry - $5,000.00 Location: 10 Warm Creek Ln. Victor, ID 8345 | |
Categories: Special Events - General
Aug
17
Sat
RUNNING FOR RETT SYNDROME 5K
Saturday, August 17, 2019 Registration – 8:30am Run Starts – 9:00am Entry Fee – $20.00 Inquiries – Leah(507)251-4815 Registration & Information Categories: Special Events - Run/Walk
Aug
31
Sat
6th Annual Pennsylvania Strollathon
Join us for the 6th Annual Pennsylvania Strollathon Saturday August 31st, 2019 Registration: 9:00am, Stroll: 10:15am Location: Millvale Riverfront Park, Millvale PA? Directions :: Website Event Chair: Christina Dean ([email protected]) & Jennifer Langzettel ([email protected]) Registration & Information
Categories: Special Events - Strollathons
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