Sep
7
Sat
13th Annual Chicago Strollathon
Join us for the 13th Annual Chicago Strollathon! Saturday September 7th, 2019 When: 11:00am Location: Kankanee State Park Map ll Directions Event Chair: Misty Gruenes ([email protected]) Visit the Event page
Categories: Special Events - Strollathons
8th Annual Nebraska Strollathon
Join us for the 8th Annual Nebraska Strollathon Saturday, September 7th 2019 Registration: 1:00pm, Stroll: 2:00pm Location: Yanney Park, 2020 W 11th St, Kearney, NE 68845 Rotary Shelter by the Splash pad Event Chairs: Jacy Horst & Megan Ladenburger & Elly Gullion Registration & Information
Categories: Special Events - Strollathons
Sep
14
Sat
![Raise a Glass logo banner](https://www.rettsyndrome.org/wp-content/uploads/RaiseAGlasslogoVOL3-1400x710.jpg)
Categories: Special Events - General
Sep
22
Sun
14th Annual Portland Strollathon
Join us for the 14th Annual Portland Strollathon Sunday, September 22nd Registration: 1:00pm, Stroll: 2:30pm Location: Rose Quarter, Portland OR Directions :: Website Event Chair: Lacey & Leigh Calvert Registration & Information
Categories: Special Events - Strollathons
Sep
27
Fri
![](https://www.rettsyndrome.org/wp-content/uploads/076c213b9108d8c3c48a6f876f8f0b64.png)
Categories: Special Events - Meetings/Symposiums
Sep
28
Sat
![](https://www.rettsyndrome.org/wp-content/uploads/076c213b9108d8c3c48a6f876f8f0b64.png)
Categories: Special Events - Meetings/Symposiums
16th Annual Cincinnati Strollathon
Join us for the 16th Annual Cincinnati Strollathon Date: Saturday, September 28th, 2019 Registration: 9:30am Stroll: 11:00am Location: Voice of America Park, West Chester OH 45069 Directions :: Website Event Chairs: Brittney Gibson, Jim Magato, & Jennifer Magato Registration & Information
Categories: Special Events - Strollathons
6th Annual Maine Strollathon
Join us for the 2019 Strollathon season! Saturday September 28th, 2019 Registration: 11:00am, Stroll: 12:30pm Location: Capitol Park, 33 Union Street, Augusta ME 04330 Event Chair: Evie Swan ([email protected]) Registration & Information
Categories: Special Events - Strollathons
Sep
29
Sun
![](https://www.rettsyndrome.org/wp-content/uploads/FF752BE8-8C59-4D46-AB3B-C6D7EA414A32.jpg)
Join us for an afternoon of Football & Fun!
Sunday, September 29, 2019 Loading Dock 2400 Kettner Blvd, #110 San Diego, CA 92101 4:00 p.m. to 9 p.m. We're excited to invite you to San Diego's very first Reach for a Cure – Football & Fun benefitting Rettsyndrome.org. This entertaining event is designed to raise funds for a cure for Rett syndrome while having lots of fun at the same time. Enjoy Sunday football, beer and a chance to connect with others who share a passion to create a world without Rett. We'll have a silent auction full of great items – perfect time to get holiday gifts, or something for yourself! Registration & Sponsorship View sponsorship document opportunities All proceeds from sponsorships, donations, and tickets goes to Rettsyndrome.org, the longest-standing Rett syndrome research and family empowerment organization.
Categories: Special Events - General
Oct
5
Sat
![RRAA 2018 Launch](https://www.rettsyndrome.org/wp-content/uploads/events-header-760x425.png)
Gulf Coast Endurance Ride
Saturday, October 5th from Biloxi MS to Pensacola FL. If you’re up for a challenging ride, consider joining KC Byers and friends for a century ride. KC is the creator of the Rett Ride Across America and step-dad to Katelyn with Rett. Last year he completed his second 2,600 mile ride across the country. Here are the details for this year’s Endurance Ride: Start: Mary Mahoneys, 110 Rue Magnolia, Biloxi, MS 39530 Finish: WEAR TV, 4990 Mobile Highway, Pensacola FL 32506 114 mile with volunteer sag support & police escorts Join for any length of the ride. Here are the multiple lag points where you can join. Lag Point #1 (120 Miles): Meet at Mary Mahoneys, 110 Rue Magnolia, Biloxi, MS 39530 Lag Point #2 (90 miles): Meet at US Hwy 90 at the Missippi/Alabama line Lag Point #3 (70 miles): Meet at Raceway 6709, 5455 Government Bvld, Mobile AL 36619 (Theodore exit junction I-10 and US 90) Lag Point #4 (45 miles): Meet at Eastern Shore Bike Shop, 845 US-90 Ste 102, Daphne, AL 36526 Lag Point #5 (20 miles): Maw Maw’s Country Market, 26010 US Hwy 90, Robertsdale, AL Junction 90 & 87 END at: WEAR Channel 3, 4990 Mobile Hwy, Pensacola Fl Ride in style with your RRAA gear- select a jersey, cycle shorts or both. Shop here. Register TODAY! Categories: Special Events - Run/Walk
OKC River Run
The goal of the OKC River Run is to raise support and awareness for Rett Syndrome, which is a genetic disorder that affects mainly girls and severely impairs "nearly every aspect of the child’s life: their ability to speak, walk, eat, and even breathe easily." The need for research is critical. The OKC River Run is a USATF sanctioned and certified course along the picturesque Oklahoma River that provides a smooth, level, paved trail through downtown Oklahoma City free of vehicle traffic.- 6:30 a.m. to 8:30 a.m. - Packet Pick Up and onsite Registration.
- 8:00 am. - Half Marathon* Start
- 8:50 a.m. - 5K Start
- 9:00 a.m. - 10K Start
- 9:00 -11:00 a.m. - Awards Ceremony *See Details
All races will use chip timing for official race results.
All courses are USATF certified.
Registration & Information Categories: Special Events - Run/Walk
Oct 5 @ 5:00 pm
![](https://www.rettsyndrome.org/wp-content/uploads/Scarlotte-Parks-Event-10.5.jpg)
Categories: Special Events - General
Oct
6
Sun
11th Annual New Jersey Strollathon
Join us for the 11th Annual New Jersey Strollathon! Sunday, October 6, 2019 Registration: 10:00am Stroll: 11:00am Location: Maxwell Park, Hoboken NJ 07030 Event Chair: Leslie Greenfield ([email protected]) Registration & Information
Categories: Special Events - Strollathons
![](https://www.rettsyndrome.org/wp-content/uploads/unnamed-1.png)
Categories: Special Events - Strollathons
Oct
19
Sat
7th Annual San Antonio Strollathon
Join us for the 7th Annual San Antonio Strollathon! Saturday October 19th, 2019 Registration: 10:00am, Stroll: 10:30am Location: San Antonio Aquarium Website :: Directions Event Chair: Courtney Bernal Registration & Information
Categories: Special Events - Strollathons
2nd Annual Tennessee Strollathon
Join us for the 2019 Strollathon season! NEW DATE: Saturday October 19th, 2019 Location: Athens Park, Athens, TN Registration: 10:00am, Stroll: 11:00am Event Chair: Sally Teague ([email protected]) Registration & Information
Categories: Special Events - Strollathons
![](https://www.rettsyndrome.org/wp-content/uploads/SoCal-2019-1400x705.png)
WHEN | Saturday, October 19, 2019
12:00 PM – 4:00 PM
WHERE | Whittier High School 12417 East Philadelphia St Whittier, CA 90601 Directions
Visit the Event Page Event Flyer Categories: Special Events - General
![](https://www.rettsyndrome.org/wp-content/uploads/unnamed-6.jpg)
A Night at the Races to Benefit Rett Syndrome
Chinese Auction Door Prizes $10 Horses $10 Entry Fee Tickets available at the door Doors open at 6pm Races start at 9pm Categories: Special Events - General
Oct
24
Thu
Oct 24 @ 9:00 am
WHEN | Thursday, October 24th, 2019 TIME | 9:00am WHERE | Monmouth University: Directions | Website Registration Information
Oct
26
Sat
Categories: Special Events - General
Nov
1
Fri
Zumbathon Charity Event for Rett Syndrome
In Honor for Allison
Date: Friday, November 1st Time: 5:00-7:30pm Join us for an evening of instructed Zumba while raising money for Rettsyndrome.org. Admission is $10.![](https://www.rettsyndrome.org/wp-content/uploads/Zumba-for-Rett.png)
Categories: Special Events - General
![](https://www.rettsyndrome.org/wp-content/uploads/Hand_invite4.jpg")
YOU CAN MAKE A DIFFERENCE
When: Friday, November 1, 2019 Where: Mercedes-Benz of The Woodlands 16917 Interstate 45 South The Woodlands, TX 77385 Time: "Come and Go" from 6:00 p.m. to 9:00 p.m. Parking: Valet Parking Available Fare: Dosey Doe is providing wine and BBQ sliders at no cost Entertainment: Acoustic show by Kevin and his son Coleton Featured Art: 30 - 40 of Dave Clements' and Kevin Black's best music black and white photographs taken over the last decade will be available for purchase (tax-deductible donation to Rett Syndrome) • Meet photographers Dave Clements & Kevin Black. • View their photography that will be displayed in the show room. • Enjoy some music memorabilia. • Listen to a live music performance by Kevin Black and his son Coleton. • Purchase a copy of their coffee table book Raising A Hand - Volume One. Pre-order order forms for Volume Two will be available. • Learn about Rett syndrome and what the two photographers are doing to raise awareness for this rare disorder. • Enjoy a Dosey Doe brisket slider and a glass of wine. • Enjoy the collection of some of the finest automobiles in the world! Finally if you can't make it and still have not pre-ordered your copy of Raising A Hand - Volume Two, you can go to www.RaisingAHand.com and do so for $42.95 ($35 plus $7.95 shipping). Plus for an additional $25 donation you can get a signed copy of Volume One shipped to your home almost immediately. Information Registration Categories: Special Events - General
Nov
2
Sat
Nov 2 @ 8:00 am
![](https://www.rettsyndrome.org/wp-content/uploads/URMC-RS-Family-Ed-Day.png)
Categories: Ed Day Education Slider
10th Annual Florida Strollathon
Join us for the 2019 Strollathon season! November 2nd, 2019 Space Field of Dreams, West Melbourne FL 9:00am-1:30pm Event Contact: Henry Perez ([email protected]) Registration
Categories: Special Events - Strollathons
Nov
9
Sat
![](https://www.rettsyndrome.org/wp-content/uploads/DD2DC353-4752-4345-9744-F9AE3B24FA29.jpg)
Be a part of our Inaugural Boots & Bling Rett Gala!
Saturday, November 9th, 2019
Firehouse Saloon 5930 Southwest Freeway, Houston, TX 77057 6:00 p.m. VIP reception for Rett Families & Sponsors 6:30 p.m. Doors open to public
We're excited to invite you to Houston's very first Reach for a Cure - Boots & Bling Rett Gala benefitting Rettsyndrome.org. This entertaining event is designed to raise funds for a cure for Rett syndrome while having lots of fun at the same time. Get dolled up, but don't forget your boots! This honky-tonk is going to rattle with special musical guests Coleton Black, Chubby Knuckle Choir and Pauline Reese. We'll also have a live and silent auction full of great items – perfect time to get holiday gifts, or something for yourself! Registration & Sponsorship View Sponsorship Opportunities All proceeds from sponsorships, donations, and tickets goes to Rettsyndrome.org, the longest-standing Rett syndrome research and family empowerment organization.
Categories: Special Events - General
Nov
15
Fri
![](https://www.rettsyndrome.org/wp-content/uploads/image001.png)
Find a Cure
a one night pop-up event with art by Cecily Miniaci
Date: November 15, 2019 Time: 6-9PM Location: 701 Broadway Blvd, Kansas City, MO Local Kansas City artist, Cecily Miniaci, will be doing a pop up art event downtown at Roasters Block on November 15th from 6-9pm with a portion of the proceeds benefiting rettsyndrome.org. Information & Registration Categories: Special Events - General
Dec
7
Sat
Hannah's Art Show
Save the Date for Hannah's Art Show. There will be note cards, prints, and original paintings for sale to benefit Rettsyndrome.org. Date: December 7, 2019 Time: 2-4pm Location: Four Corners Framing Gallery Contact Information: Trisha Carpenter Email: [email protected] Categories: Special Events - General
Jan
7
Tue
![](https://www.rettsyndrome.org/wp-content/uploads/jan.png)
Categories: Ed Day Education Slider
Jan
25
Sat
Jan 25 @ 4:00 pm
![](https://www.rettsyndrome.org/wp-content/uploads/ticketbanner.jpg)
Rett Syndrome Awareness Basketball Game: Quinnipiac vs Fairfield
Date: Saturday, January 25th, 2020 Time: 4:00pm The People's United Center at Quinnipiac, 305 Sherman Ave, Hamden, CT 06518 MAAC Tournament Kick Off, Rett Syndrome Awareness, Camper Reunion Day Information & Registration For Questions please contact Nicole McAmis at [email protected] Categories: Special Events - General
Feb
11
Tue
![](https://www.rettsyndrome.org/wp-content/uploads/Fink-Headshot2-scaled.jpg)
Categories: Ed Day Education Slider
Subscribe to filtered calendar