Date: Saturday, October 26, 2019
Time: 6:00PM-10:00PM
Location: Tre Posti, 641 Main Street, St. Helena, CA 94574
Zumbathon Charity Event for Rett Syndrome
In Honor for Allison
Date: Friday, November 1st
Time: 5:00-7:30pm
Join us for an evening of instructed Zumba while raising money for Rettsyndrome.org. Admission is $10.
Contact Information:
Claudia Juarez
817-233-2189
![](https://www.rettsyndrome.org/wp-content/uploads/Hand_invite4.jpg")
YOU CAN MAKE A DIFFERENCE
When: Friday, November 1, 2019
Where: Mercedes-Benz of The Woodlands
16917 Interstate 45 South
The Woodlands, TX 77385
Time: “Come and Go” from 6:00 p.m. to 9:00 p.m.
Parking: Valet Parking Available
Fare: Dosey Doe is providing wine and BBQ sliders at no cost
Entertainment: Acoustic show by Kevin and his son Coleton
Featured Art: 30 – 40 of Dave Clements’ and Kevin Black’s best music black and white photographs taken over the last decade will be available for purchase (tax-deductible donation to Rett Syndrome)
• Meet photographers Dave Clements & Kevin Black.
• View their photography that will be displayed in the show room.
• Enjoy some music memorabilia.
• Listen to a live music performance by Kevin Black and his son Coleton.
• Purchase a copy of their coffee table book Raising A Hand – Volume One. Pre-order order forms for Volume Two will be available.
• Learn about Rett syndrome and what the two photographers are doing to raise awareness for this rare disorder.
• Enjoy a Dosey Doe brisket slider and a glass of wine.
• Enjoy the collection of some of the finest automobiles in the world!
Finally if you can’t make it and still have not pre-ordered your copy of Raising A Hand – Volume Two, you can go to www.RaisingAHand.com and do so for $42.95 ($35 plus $7.95 shipping). Plus for an additional $25 donation you can get a signed copy of Volume One shipped to your home almost immediately.
10th Annual Florida Strollathon
Join us for the 2019 Strollathon season!
November 2nd, 2019
Space Field of Dreams, West Melbourne FL
9:00am-1:30pm
Event Contact: Henry Perez (henrymperez@att.net)
Be a part of our Inaugural Boots & Bling Rett Gala!
Firehouse Saloon
5930 Southwest Freeway, Houston, TX 77057
6:00 p.m. VIP reception for Rett Families & Sponsors
6:30 p.m. Doors open to public
We’re excited to invite you to Houston’s very first Reach for a Cure – Boots & Bling Rett Gala benefitting Rettsyndrome.org. This entertaining event is designed to raise funds for a cure for Rett syndrome while having lots of fun at the same time.
Get dolled up, but don’t forget your boots! This honky-tonk is going to rattle with special musical guests Coleton Black, Chubby Knuckle Choir and Pauline Reese. We’ll also have a live and silent auction full of great items – perfect time to get holiday gifts, or something for yourself!
View Sponsorship Opportunities
All proceeds from sponsorships, donations, and tickets goes to Rettsyndrome.org, the longest-standing Rett syndrome research and family empowerment organization.
Please join us as we speak to an orthopedic expert in neuromuscular scoliosis and developmental hip dysplasia. We will discuss how and when these typically occur in Rett syndrome, and what we can do about it.
Questions and comments submitted in advance will be addressed, and there will be plenty of time for write-in questions during the session.
RettEd Webinars are a free resource designed to empower families affected by Rett syndrome and their care teams.
Find a Cure
a one night pop-up event with art by Cecily Miniaci
Date: November 15, 2019
Time: 6-9PM
Location: 701 Broadway Blvd, Kansas City, MO
Local Kansas City artist, Cecily Miniaci, will be doing a pop up art event downtown at Roasters Block on November 15th from 6-9pm with a portion of the proceeds benefiting rettsyndrome.org.
Hannah’s Art Show
Save the Date for Hannah’s Art Show. There will be note cards, prints, and original paintings for sale to benefit Rettsyndrome.org.
Date: December 7, 2019
Time: 2-4pm
Location: Four Corners Framing Gallery
Contact Information: Trisha Carpenter
Email: tpcarpenter503@yahoo.com
Please join us as Tim Benke, MD PhD, Director, Rett syndrome Clinic, Children’s Hospital Colorado, and Rettsyndrome.org Medical Advisor and Paige Nues, Director of Family Empowerment at Rettsyndrome.org to explore the clinical trials landscape outlook for 2020.
This live webcast will be especially helpful to caregivers who are wondering if participating in a clinical trial could be an option for their family and how to become research-ready. We will discuss what clinical trials are enrolling, about to enroll, or have closed enrollment. We will also discuss enrollment criteria, what it means to participate in a trial, and hear from a panelist of parent trailblazers whose children have participated in a Rett syndrome clinical trial to hear how they did it.
Questions and comments submitted in advance will be addressed, and there will be plenty of time for write-in questions during the session.
RettEd Webcasts are a free resource designed to empower families affected by Rett syndrome and their care teams.
Rett Syndrome Awareness Basketball Game: Quinnipiac vs Fairfield
Date: Saturday, January 25th, 2020
Time: 4:00pm
The People’s United Center at Quinnipiac, 305 Sherman Ave, Hamden, CT 06518
MAAC Tournament Kick Off, Rett Syndrome Awareness, Camper Reunion Day
For Questions please contact Nicole McAmis at nicole.mcamis@quinnipiac.edu