Topic: Newer Parents: Recommendations for a Healthier Start to Your Unexpected Journey
Speaker: Tristen Dinkel, RN, DCH, Paige Nues, Sam Brant
Topic: Rett Syndrome Research Outlook: 2019 & Beyond
Speaker: Steve Kaminsky, PhD
Topic: A Good Night’s Sleep To All
Speaker: Dr. Daniel Glaze, TCH, BCM
Topic: IEP Strategies for Successful Inclusion
Speaker: Mickie McCool and Katie Busch
Speakers: Jenny Downs, PhD, Michelle Stahlhut, PT, PhD, Theresa Bartolotta, PhD, Donna Witzleben
Enjoy an accessible family friendly park for 2 days with a private dinner on Saturday. Tickets are $50/person; this is at least a $70 savings! Plan your Accessible Seasame Place Day!
Dinner:
Date: Saturday, May 18
Time: 6:00 – 7:00 pm
Where: Abby’s Garden Grille
After 5:30 pm parking is free
Tickets must be pre-purchased by Wednesday, May 8th 2019 and are non-refundable.
Tickets include: Private after-hours dinner with a Sesame character appearance, and 2-day park passes to be used on Saturday, May 18th and Sunday, May 19th.
The park is less than a mile away from the Rett Ed Day at Sheraton Bucks County. Parking at Sesame Place is $27 or $23 based on the lot. The Sheraton offers free parking and free non-ADA shuttle.
For more information contact Paige Nues pnues@rettsyndrome.org or with questions to Erin Cassano (local Rett parent) erin.cassano@gmail.com
Topic: Nutrition Strategies for Rett Syndrome
Topic: Genetics of Rett Syndrome and the MECP2 Gene
Please join us Tuesday, September 10th at 1:00 pm eastern with Huda Y. Zoghbi, M.D., Director, Jan and Dan Duncan Neurological Research Institute at Texas Children’s Hospital; Baylor College of Medicine as we journey from discovery of the Rett syndrome disease-causing MECP2 gene to where that discovery and subsequent learnings have taken us to today.
This live webinar is intended to provide hope and inspiration to caregivers and families. Our goal is to help you frame our collective Hope for better treatments and ultimately a cure for Rett syndrome while empowering you with strategies in the here and now. Questions and comments submitted in advance will be addressed, and there will be plenty of time for write-in questions during the session. Visit www.rettsyndrome.org/RettEd for additional 2019 webinar topics, and to access recording links from past webinars and associated QA documents. RettEd is a monthly series featuring expert Speakers on Rett-related research and care topics, hosted by Rettsyndrome.org, to help pave your personal pathway to empowerment