Our Mission & Impact

Our Mission: To accelerate full spectrum research to cure Rett syndrome and empower families with information, knowledge and connectivity.

We accomplish our mission through


To accomplish this core mission, the priority of Rettsyndrome.org's leadership will be effective, assertive, comprehensive, and strategic fundraising.



Rettsyndrome.org will operate in accordance with those generally accepted principles necessary to maintain or achieve a  Four Star Charity Navigator rating.


Our Impact


2017 Impact Report

We accomplished many things in 201. View or download our 2017 Impact Report for a summary of our progress in research and family empowerment.


We invest in research

Since 1998 Rettsyndrome.org has invested more than $44 million in Rett syndrome research. See our the research projects we are funding. 


We are obsessed with efficiency

91% of every dollar funds research and family empowerment.


Our performance is world-class

We have exceeded industry standards for six consecutive years on Charity Navigator's annual ratings of charities. This indicator is one of many that shows the strength of Rettsyndrome.org.