Monday, August 5, 2019

Rett syndrome clinical trials are available at various stages in the process. Please visit our Clinical Trial page for current enrollment status.

Stone Soup Group

Tuesday, July 23, 2019

Visit Stone Soup Group Website Stone Soup Group is a statewide 501(c)3 non-profit that provides information, support, training and resources to assist families caring for children with special needs. SSG is staffed almost entirely by parents or family members of a child with special needs, so they know the journey and are better able to help … Read More

A FIRST FOR RETT: FDA approves Trofinetide for the treatment of Rett syndrome!
It’s Giving Tuesday - Go ALL IN for Rett!

A FIRST FOR RETT: FDA approves Trofinetide for the treatment of Rett syndrome!