Evaluation of the Efficacy, Safety, and Tolerability of Sarizotan in Rett Syndrome With Respiratory Symptoms

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Evaluation of the Efficacy, Safety, and Tolerability of Sarizotan in Rett Syndrome With Respiratory Symptoms
Thursday, July 25, 2019

Visit Evaluation of the Efficacy, Safety, and Tolerability of Sarizotan in Rett Syndrome With Respiratory Symptoms Website This study evaluates the safety, tolerability and efficacy of Sarizotan in reducing respiratory abnormalities in Rett syndrome.  Eligibility criteria include girls or boys age 13 or above. Rush University Medical Center For study information, contact Susan Rhode  [email protected] or call 1-312-942-0079.

Biobanking of Rett Syndrome and Related Disorders
Tuesday, July 23, 2019

Visit Biobanking of Rett Syndrome and Related Disorders Website 1-617-355-8994 The purpose of this study is to advance understanding of the natural history of Rett syndrome (RTT), MECP2-duplication disorder (MECP2 Dup), RTT-related disorders including CDKL5, FOXG1, and individuals with MECP2 mutations who do not have RTT. Samples with DNA will be collected. This study will be … Read More

Travel Assistance for NHS Sites
Tuesday, July 23, 2019

Travel Assistance for NHS Sites – 1-781-333-1593 Marriott is working on establishing discounts for hotels near our clinical trial sites.  For more information, contact Ashley Lucchese, Marriott Sales Executive [email protected] Nearby hotels include:  Residence Inn Boston Back Bay/Fenway & Courtyard Boston Brookline

Biobanking of Rett Syndrome and Related Disorders
Tuesday, July 23, 2019

Visit Biobanking of Rett Syndrome and Related Disorders Website The purpose of this study is to advance understanding of the natural history of Rett syndrome (RTT), MECP2-duplication disorder (MECP2 Dup), RTT-related disorders including CDKL5, FOXG1, and individuals with MECP2 mutations who do not have RTT. Samples with DNA will be collected. USCF Benioff Children’s Hospital, … Read More