Our Clinical Research Centers of Excellence

Rettsyndrome.org is very pleased to share with you that we have created a new and innovative clinic program designation, the Rettsyndrome.org Clinical Research Centers of Excellence.  Today, in North America, we now work with 22 Rett syndrome clinics that provide care and treatment to those with Rett syndrome and participate in our North American Rett Syndrome Clinics Network.  At this time, we are recognizing the 14 clinics that have been involved with the Natural History Study for their long commitment to studying and improving the lives of those who suffer from Rett syndrome as a Rettsyndrome.org Clinical Research Center of Excellence.  We hope that in time every Rett syndrome clinic will achieve this status.


Rettsyndrome.org Clinical Centers of Excellence

University of Alabama Birmingham Civitan International Research Center, Birmingham AL
University of California San Diego, Rady Children's Hospital, San Diego CA
University of California San Francisco Benioff Children's Hospital Oakland, Walnut Creek CA
Children’s Hospital Colorado, Aurora CO
Rush University Medical Center, Chicago IL
Boston Children's Hospital and Harvard Medical School, Boston MA
Gillette Children’s Specialty Healthcare, Saint Paul MN
Washington University School of Medicine Saint Louis Children’s Hospital, Saint Louis MO
University of Rochester Medical Center, Rochester NY
Cincinnati Children’s Hospital Medical Center, Cincinnati OH
Children's Hospital of Philadelphia, Philadelphia PA
Greenwood Genetic Center, Greenwood SC
Vanderbilt University School of Medicine and Vanderbilt Kennedy Center for Research on Human Development, Nashville TN
Texas Children’s Hospital, The Blue Bird Circle Rett Center, Houston TX


Rady Children's Hospital, San Diego COE Presentation


UCSF Benioff's Oakland COE designation

Katie’s Clinic for Rett Syndrome and Related Disorders, led by Medical Director Dr Mary Jones and team, is the 4th clinic nationwide to receive this award and was designated as such at a celebration luncheon Friday, Feb 24, at the CHORI library. Rettsyndrome.org also recognized John and Kathy Corpus, as well as Sol and Christine Varon for raising millions of dollars through the Samantha Corpus Foundation and the Sarah Varon Foundation for Rettsyndrome.org research, enabling some of the most important and relevant clinical research projects accomplished to date.  Read more here.

Vanderbilt University's COE designation

Rush University Medical Center's COE designation

 Gillette Children’s Specialty Healthcare's COE presentation


Children's Hospital of Philadelphia COE presentation

Rettsyndrome.org, a nonprofit organization dedicated to accelerating research of treatments and a cure for Rett syndrome, has named Children’s Hospital of Philadelphia (CHOP) a Clinical Research Center of Excellence. CHOP is now one of 14 institutions in the United States to receive this designation, which recognizes an institution’s commitment to research and partnering with families and community healthcare providers to deliver care that is comprehensive and appropriate for a family's individual needs