Our Clinical Research Centers of Excellence

 

Rettsyndrome.org is very pleased to share with you that we have created a new and innovative clinic program designation, the Rettsyndrome.org Clinical Research Centers of Excellence.  Today, in North America, we now work with 22 Rett syndrome clinics that provide care and treatment to those with Rett syndrome and participate in our North American Rett Syndrome Clinics Network.  At this time, we are recognizing the 14 clinics that have been involved with the Natural History Study for their long commitment to studying and improving the lives of those who suffer from Rett syndrome as a Rettsyndrome.org Clinical Research Center of Excellence.  We hope that in time every Rett syndrome clinic will achieve this status.

 

Rettsyndrome.org Clinical Centers of Excellence


University of Alabama Birmingham Civitan International Research Center, Birmingham AL
University of California San Diego, Rady Children's Hospital, San Diego CA
University of California San Francisco Benioff Children's Hospital Oakland, Walnut Creek CA
Children’s Hospital Colorado, Aurora CO
Rush University Medical Center, Chicago IL
Boston Children's Hospital and Harvard Medical School, Boston MA
Gillette Children’s Specialty Healthcare, Saint Paul MN
Washington University School of Medicine Saint Louis Children’s Hospital, Saint Louis MO
University of Rochester Medical Center, Rochester NY
Cincinnati Children’s Hospital Medical Center, Cincinnati OH
Children's Hospital of Philadelphia, Philadelphia PA
Greenwood Genetic Center, Greenwood SC
Vanderbilt University School of Medicine and Vanderbilt Kennedy Center for Research on Human Development, Nashville TN
Texas Children’s Hospital, The Blue Bird Circle Rett Center, Houston TX

 

COE Presentations

Vanderbilt University

11/2016

 

 

Gillette Children's Specialty Healthcare

4/2017

 

 

Rush University Medical Center

6/2017

 

    

Saint Louis Children's Hospital

5/2017

 

Children's Hospital of Philadelphia

5/2017

 

Benioff Children's Hospital 

2/2017

Katie’s Clinic for Rett Syndrome and Related Disorders, led by Medical Director Dr Mary Jones and team, is the 4th clinic nationwide to receive this award and was designated as such at a celebration luncheon Friday, Feb 24, at the CHORI library. Rettsyndrome.org also recognized John and Kathy Corpus, as well as Sol and Christine Varon for raising millions of dollars through the Samantha Corpus Foundation and the Sarah Varon Foundation for Rettsyndrome.org research, enabling some of the most important and relevant clinical research projects accomplished to date.  Read more here.

 

Texas Children's Hospital/Blue Bird Circle Rett Center

4/2017

 

 

Rady Children's Hospital

10/2016

 

Children's Hospital Colorado

4/2017

 

University of Alabama

9/2017

 

 

Cincinnati Children's Hospital

10/2016

 

  Greenwood Genetic Center 

5/2017

 

University of Rochester Medical Center

7/2017

 

  Boston Children's Hospital - TBD