Our Clinical Research Centers of Excellence


Rettsyndrome.org is very pleased to share with you that we have created a new and innovative clinic program designation, the Rettsyndrome.org Clinical Research Centers of Excellence.  Today, in North America, we now work with 22 Rett syndrome clinics that provide care and treatment to those with Rett syndrome and participate in our North American Rett Syndrome Clinics Network.  At this time, we are recognizing the 14 clinics that have been involved with the Natural History Study for their long commitment to studying and improving the lives of those who suffer from Rett syndrome as a Rettsyndrome.org Clinical Research Center of Excellence.  We hope that in time every Rett syndrome clinic will achieve this status.


Rettsyndrome.org Clinical Research Centers of Excellence

University of Alabama Birmingham Civitan International Research Center, Birmingham AL
University of California San Diego, Rady Children's Hospital, San Diego CA
University of California San Francisco Benioff Children's Hospital Oakland, Walnut Creek CA
Children’s Hospital Colorado, Aurora CO
Rush University Medical Center, Chicago IL
Boston Children's Hospital and Harvard Medical School, Boston MA
Gillette Children’s Specialty Healthcare, Saint Paul MN
Washington University School of Medicine Saint Louis Children’s Hospital, Saint Louis MO
University of Rochester Medical Center, Rochester NY
Cincinnati Children’s Hospital Medical Center, Cincinnati OH
Children's Hospital of Philadelphia, Philadelphia PA
Greenwood Genetic Center, Greenwood SC
Vanderbilt University School of Medicine and Vanderbilt Kennedy Center for Research on Human Development, Nashville TN
Texas Children’s Hospital, The Blue Bird Circle Rett Center, Houston TX


COE Presentations

Vanderbilt University




Gillette Children's Specialty Healthcare




Rush University Medical Center




Saint Louis Children's Hospital



Children's Hospital of Philadelphia



Benioff Children's Hospital 


Katie’s Clinic for Rett Syndrome and Related Disorders, led by Medical Director Dr Mary Jones and team, is the 4th clinic nationwide to receive this award and was designated as such at a celebration luncheon Friday, Feb 24, at the CHORI library. Rettsyndrome.org also recognized John and Kathy Corpus, as well as Sol and Christine Varon for raising millions of dollars through the Samantha Corpus Foundation and the Sarah Varon Foundation for Rettsyndrome.org research, enabling some of the most important and relevant clinical research projects accomplished to date.  Read more here.


Texas Children's Hospital/Blue Bird Circle Rett Center




Rady Children's Hospital



Children's Hospital Colorado



University of Alabama




Cincinnati Children's Hospital



  Greenwood Genetic Center 



University of Rochester Medical Center



  Boston Children's Hospital - TBD