Events

Jan
30
Tue
“What is Rett Syndrome?”… the Diagnosis, the Symptoms, the Natural History, and Best Care Interventions Today
Jan 30 @ 1:00 pm – 2:30 pm

Topic: “What is Rett Syndrome?”… the Diagnosis, the Symptoms, the Natural History, and Best Care Interventions Today
Speaker: Alan Percy, MD, UAB

 Click to View Video 

Read the Q&A

Feb
13
Tue
Respiratory Issues in Rett Syndrome, esp during cold and flu season
Feb 13 @ 1:00 pm – 2:30 pm

Topic: Respiratory Issues in Rett Syndrome, esp during cold and flu season
Speaker: Marianna Sockrider, MD, DrPH, AE-C, TCH

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Read the Q&A

Mar
13
Tue
Puberty and Adulthood: Information for moms, dads, everyone!
Mar 13 @ 1:00 pm – 2:30 pm

Topic: Puberty and Adulthood: Information for moms, dads, everyone!
Speaker: Jane Lane, RN, UAB

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Audience questions are all addressed by our Speaker within the recording

Apr
10
Tue
Common GI Issues in Rett syndrome, How to Intervene and Clinical Research Outlook
Apr 10 @ 1:00 pm – 2:30 pm

Topic: Common GI Issues in Rett syndrome, How to Intervene and Clinical Research Outlook
Speaker: Dr. K Motil, BCM, Texas Children’s Hospital

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Audience questions are all addressed by our Speaker within the recording

May
8
Tue
IEP: Strategies for Rett Success
May 8 @ 1:00 pm – 2:30 pm

Topic: IEP: Strategies for Rett Success
Speaker: Valerie Owen, PhD

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(you will be prompted to submit a registration form to view the video)
Audience questions are all addressed by our Speaker within the recording

Jul
10
Tue
Communication- Making it Count
Jul 10 @ 1:00 pm – 2:30 pm

Topic: Communication- Making it Count
Speaker: Judy Lariviere, M.Ed.,OTR/L, UCSF

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(you will be prompted to submit a registration form to view the video)
Audience questions are all addressed by our Speaker within the recording

Aug
7
Tue
U.S.-Russia Rett syndrome Cultural Exchange
Aug 7 @ 1:00 pm – 2:30 pm

Topic: U.S.-Russia Rett syndrome Cultural Exchange
Speaker: Olga Timutsa, President, Rett Syndrome Association of Russia, Mother to Katerina
Olga Timutsa will be visiting the U.S. as a guest of Rettsyndrome.org for a cultural exchange focused on diagnosis, care, and life for children and adults with Rett syndrome and their families. Hear Olga share about life in Russia with Rett syndrome and how our research and efforts have a global impact.

Click Here to View Video

Aug
14
Tue
Understanding Autonomic Dysfunction in Rett Syndrome
Aug 14 @ 1:00 pm – 2:30 pm

Topic: Understanding Autonomic Dysfunction in Rett Syndrome
Speaker: Jeff Neul, MD, PhD, Vanderbilt University

Click to View Video

(you will be prompted to submit a registration form to view the video)
Audience questions are all addressed by our Speaker within the recording