In September IRSF returns with our in-person Strollathons! These nationwide fundraisers bring together local communities to go ALL IN for treatments and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.
This year, we are excited to announce that Acadia Pharmaceuticals is the national presenting sponsor for the Strollathon. As part of this sponsorship, an Acadia representative will be on-site at many of these events to connect with families and the Rett community.
As you may know, Acadia recently submitted a New Drug Application for trofinetide to the FDA. This is the first time a treatment for Rett syndrome has gotten this close to the finish line. If approved, it will be the first therapeutic treatment available for those with Rett syndrome. Read Acadia’s full community update on the process here.
Ready to register?
Strollathons are already scheduled in eight states (see below for locations, dates, and links to register). And make sure to view our complete event calendar and check back often as more states are being added.
Strollathons are an amazing opportunity to connect with other Rett families near you. We hope to see you this fall as we go ALL IN to help end Rett.
2022 Strollathon Locations
Drake Sports Park – West Bloomfield Township, MI
Yanney Heritage Park – Kearney, NE
New Jersey Strollathon
Thompson Park – Lincroft, NJ
Environmental Learning Center – Savage, MN
Cincinnati Zoo & Botanical Garden – Cincinnati, OH
St. Louis Strollathon
JCC St. Louis – St. Louis, MO
Matthew Henson State Park – Aspen Hill, MD
So Cal Strollathon
Whittier High School – Whittier, CA
Gussie Field Watterworth Park – Farmers Branch, TX
Don’t see a stroll near you?
Plan an event in your city. We’ll give you all the tools to get started and help you every step of the way!
Unable to participate in person?
You’re welcome to participate and fundraise virtually. Gather your family and friends, walk in a park near you, and post your photos on your social media to help raise donations and awareness.
Want to donate?
Go to any Strollathon event and hit the donate button. Your gift will help raise money to end Rett while encouraging organizers and participants.
Looking for sponsorship opportunities?
Visit your local Strollathon’s page to download the sponsorship packet and contact your event chair(s) to learn more about sponsorship opportunities and benefits.
For questions on IRSF Strollathons or other fundraising events, please contact Jackie Ventura, Family Development Manager, at [email protected] for more information.