Midwest Rett Syndrome Foundation (MRSF)

Midwest Rett Syndrome Foundation (MRSF)

Sunday, November 1, 2020

Visit Midwest Rett Syndrome Foundation Website The mission of MRSF is to fund research initiatives and promote wellness and education of families within the community that are affected by Rett syndrome. View Midwest Rett Families Group Facebook Page

North Dakota Assistive

Sunday, November 1, 2020

Visit North Dakota Assistive Website North Dakota Assistive (formerly IPAT) is a non-profit organization that strives to bring assistive technology devices and services into the lives of North Dakotans and Minnesotans of all ages who need it. Our goal is to help bridge the gap between ability and disability using assistive technology.

North Dakota Association for the Disabled

Sunday, November 1, 2020

Visit North Dakota Association for the Disabled Website NDAD is a statewide, charitable nonprofit organization helping people with a wide range of disabilities and medical needs in North Dakota and neighboring communities. From specialized equipment or prescription medications to other costly medical travel or services, NDAD’s goal is to relieve the financial burden of our … Read More

Family Voices of North Dakota

Sunday, November 1, 2020

Visit Family Voices Website Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through this national network, Family Voices provides families tools to make informed decisions, advocates for improved public and private policies, builds partnerships among professionals and families, and serves as a trusted resource … Read More

Biobanking of Rett Syndrome and Related Disorders

Sunday, November 1, 2020

Visit Biobanking of Rett Syndrome and Related Disorders Website The purpose of this study is to advance understanding of the natural history of Rett syndrome (RTT), MECP2-duplication disorder (MECP2 Dup), RTT-related disorders including CDKL5, FOXG1, and individuals with MECP2 mutations who do not have RTT. Samples with DNA will be collected.  This study is being … Read More