Rett Syndrome Clinic-University of Rochester Medical Center

HomeState Resource

Monday, August 5, 2019

Rett syndrome clinical trials are available at various stages in the process. Please visit our Clinical Trial page for current enrollment status.

Parent Network of the Capital Region (PNCR) 
Monday, July 29, 2019

Visit Parent Network of the Capital Region (PNCR) Website PNCR helps families and professionals understand education laws and regulations, parents’ rights, and rights of students receiving special education services. PNCR also offers workshops for parents

The Buffalo Zoo
Monday, July 29, 2019

Visit The Buffalo Zoo Website The zoo offers unique programs geared towards children with developmental disabilities.

A FIRST FOR RETT: FDA approves Trofinetide for the treatment of Rett syndrome!
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It’s Giving Tuesday - Go ALL IN for Rett!
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A FIRST FOR RETT: FDA approves Trofinetide for the treatment of Rett syndrome!