Monday, August 5, 2019

Rett syndrome clinical trials are available at various stages in the process. Please visit our Clinical Trial page for current enrollment status.

Susan Norwell with Focused Learning Solutions

Thursday, July 25, 2019

Visit Susan Norwell with Focused Learning Solutions Website Susan has a private practice focusing on nonverbal individuals. She has worked with many girls with Rett syndrome and uses a variety of AT/AAC tools to teach literacy and reading.

Helping from Heaven

Thursday, July 25, 2019

Visit Helping from Heaven Website Helping From Heaven has Lexi’s Closet, an inventory closet of medical equipment, that you can try out at no cost.

A FIRST FOR RETT: FDA approves Trofinetide for the treatment of Rett syndrome!
It’s Giving Tuesday - Go ALL IN for Rett!

A FIRST FOR RETT: FDA approves Trofinetide for the treatment of Rett syndrome!