Rady’s Children’s Hospital Medical Office Building, 4th Floor, North, 3030 Children’s Way, San Diego, CA 92123 Medical Lead: Dr. Richard Haas Tel: 858 966 5819 Fax: 858 966 4930 Learn More
Visit Biobanking of Rett Syndrome and Related Disorders Website The purpose of this study is to advance understanding of the natural history of Rett syndrome (RTT), MECP2-duplication disorder (MECP2 Dup), RTT-related disorders including CDKL5, FOXG1, and individuals with MECP2 mutations who do not have RTT. Samples with DNA will be collected. USCF Benioff Children’s Hospital, … Read More
Rady Children’s Hospital San Diego Rett Clinic Visit Rady Children’s Hospital San Diego Rett Clinic Website 1-858-966-6458 1-853-684-8822 NHS Information The Rett syndrome clinic at Rady Children’s Hospital in San Diego is led by Dr. Richard Haas. He is a physician-scientist who sees patients with Rett syndrome and conducts clinical research. For NHS information, email Karen Ditslear [email protected] … Read More
Paige Nues,- Family Empowerment Director, International Rett Syndrome Foundation (Northern CA/Bay Area) [email protected] 1-510-499-3858 Jenny Mosca – volunteer Family Empowerment Representative Co-Chair, Vista, CA [email protected] 1-760-492-3989 Daniel Warner – volunteer Family Empowerment Representative Co-Chair, Foothill Ranch, CA [email protected] 1-949-521-2665 Sherri Brady – volunteer Family Empowerment Representative, Southern CA [email protected] 1-562-619-0109