Rady’s Children’s Hospital Medical Office Building, 4th Floor, North, 3030 Children’s Way, San Diego, CA 92123 Medical Lead: Dr. Richard Haas Tel: 858 966 5819 Fax: 858 966 4930 Learn More
Visit Biobanking of Rett Syndrome and Related Disorders Website The purpose of this study is to advance understanding of the natural history of Rett syndrome (RTT), MECP2-duplication disorder (MECP2 Dup), RTT-related disorders including CDKL5, FOXG1, and individuals with MECP2 mutations who do not have RTT. Samples with DNA will be collected. USCF Benioff Children’s Hospital, … Read More
Rady Children’s Hospital San Diego Rett Clinic Visit Rady Children’s Hospital San Diego Rett Clinic Website 1-858-966-6458 1-853-684-8822 NHS Information The Rett syndrome clinic at Rady Children’s Hospital in San Diego is led by Dr. Richard Haas. He is a physician-scientist who sees patients with Rett syndrome and conducts clinical research. For NHS information, email Karen Ditslear [email protected]. … Read More
Clinic Name: Comprehensive Rett Syndrome Clinic Department: Department of Neurology Medical Director: David Liberman, MD, PhD Clinic Address: Department of Neurology, Fegan 11; 300 Longwood Ave, Boston, MA 02115 Clinic Phone: (617) 355-2063 Clinic Email: [email protected] Part of the IRSF Center of Excellence Network CLINIC WEBSITE
Clinic Name: UAB/Children’s of Alabama Rett Syndrome Clinic Medical Director: Amitha Ananth, MD Clinic Address: Children’s of Alabama – 1600 7th Avenue South, Birmingham, AL 35233 Clinic Phone: (205) 638-2551 Part of the IRSF Center of Excellence Network CLINIC WEBSITE