Introducing Rett Rounds, our new video series with Dr. K .,
that will address important issues that concern our families.


May 1, 2017

Research Strategy Video Two:  Where does all the money go?


April 5, 2017

Research Strategy Video One:  What is's Research Strategy?



March 21, 2017

Clinical Trials Video Six:  Will a Family Receive Compensation For Participating in a Clinical Trial?

March 7, 2017

Clinical Trials Video Five:  How Long Does A Clinical Trial Take?


Clinical Trials Video Four:  Why Participate in a Clinical Trial? 


February 13, 2017

Clinical Trials Video Three:  How is a Family Chosen to Participate in a Clinical Trial? 


 February 1, 2017

Clinical Trials Video One:  What are the Benefits of a Clinical Trial? 


 Clinical Trials Video Two:  What are the Phases of a Clinical Trial? 




The information, including but not limited to, material contained in these videos are for informational purposes only. The purpose of this website is to promote broad parent understanding and knowledge of various topics for Rett syndrome.  It is not intended to be a substitute for professional medical advice, diagnosis or treatment. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. always advises you to seek the advice of your physician or other qualified health care provider with any questions you may have regarding a medical condition or treatment. is a 501c(3) non-profit corporation registered as the International Rett Syndrome Foundation

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