Curerett Gives

October 7, 2014

Curerett.org contributed an additional $150,000 to Rettsyndrome.org. With this support, Rettsyndrome.org will be able to further push recent grants aimed at propelling translational research, launching the neuro-habilitation therapeutic program, and funding clinical research, which collective received $1.5M from Rettsyndrome.org so far in 2014, as well as support the recent annual call for basic discovery research, training fellowships, and translational research in pharmacologic treatments. 

These projects will contribute to Rettsyndrome.org’s program for bringing “Research to Reality.”  Rettsyndrome.org has advanced its comprehensive strategy to accelerate discoveries in fundamental research towards clinical studies to improve the lives and treatment of those living with Rett syndrome. Emphasis on translational and clinical research will ensure that new ideas are constantly flowing into the drug pipeline and neuro-habilitation platforms both aimed at accelerating the treatments and maximizing function in Rett syndrome.

Rettsyndrome.org’s Chief Science Officer, Steve Kaminsky, PhD comments on the research strategy, “With potential treatments on the horizon, we have coined the phrase that our pharmacologic treatments are designed to “correct Rett biology.”  However, as we proceed down this road, we have to identify new technologies and therapies that “reset the neurology” in Rett syndrome to maximize our girls’ abilities. To this end, we have initiated a new program this year and it is called our Neuro-Habilitation Program.  The time is right to begin looking at this area of research so that the fruits of this labor mature at the same time as our other research programs which identify pharmacologic treatments.  My hope is that the work will converge on each other, and we can match the best practices in drug therapy to the best practices in neuro-habilitation therapy.”

Curerett.org and Rettsyndrome.org officially announced their partnership in early 2014. Cure Rett decided to partner with Rettsyndrome.org to direct their dollars raised towards Rettsyndrome.org's research strategy.

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