We make awards to an institution, not to the individual. To be eligible, you have to be affiliated with a for-profit or not for profit institution. Principal Investigators have to be in a tenure-track, tenured or in a research position recognized by the institution.
For mentored training fellowships, Postdoctoral Associates, Postdoctoral Fellows and Research Associates with an identified mentor/sponsor are eligible to apply as a principal investigator.
Discoveries and related regulatory approvals made under Rettsyndrome.org’s sponsorship are the property of the Sponsoring Institution or Principal Investigator conducting the research; provided, however, that Rettsyndrome.org shall have the right of royalty-free use for non-commercial purposes of such discoveries. The Sponsoring Institution and Principal Investigator are responsible for ensuring that prompt public disclosure of all commercially usable information is made as soon as practical. The Principal Investigator and Sponsoring Institution are also responsible for notifying Rettsyndrome.org of the filing of any letters patent for any discovery made on research funded by Rettsyndrome.org.
Please download the Rettsyndrome.org Policy Statement on Research Support.
Your award may be terminated under any of the following circumstances:
- The Principal Investigator’s employment, affiliation or other relationship with the Sponsoring Institution is terminated for any reason.
- The Principal Investigator is unable to carry out, in a timely manner, the research for any reason.
- The Principal Investigator or any member of his/her research team is found by an institutional investigation to have committed scientific misconduct or fraud.
- The Principal Investigator has failed to comply with any of the terms and conditions of the Award.
- Rettsyndrome.org concludes that the Principal Investigator has received overlap funding for the Award or that the funds are not being used for the purposes originally outlined in the Research Proposal.
*Please Note: In the event of cancellation or termination, all unexpended funds as of the termination/cancellation date must be returned to Rettsyndrome.org within 45 days of such written notice.
Yes. Travel costs are provided for funded investigators to attend the Rettsyndrome.org Rett Syndrome Symposium. These costs may include meeting registration fees and travel to the conference. Hotel lodging is paid by Rettsyndrome.org.
If the parameters of a particular research proposal require travel to complete the research (such as traveling to give an examination to a patient who cannot travel), this expense can be included in the award.
Please Note: All Rettsyndrome.org awardee responsibilities are detailed in the Rettsyndrome.org Research Support Agreement. For a copy of this agreement, please email Andrea Reed, Manager of Grants and Contracts [email protected].
Rettsyndrome.org funding is automatically carried-forward from the first year of funding to the second; a formal request is not necessary.
In general, Rettsyndrome.org grantees are allowed a certain degree of latitude to rebudget within and between budget categories to meet unanticipated needs and to make other types of post-award changes. Changes may be made at the grantee’s discretion as long as they are less than a 20% change between budget categories. Rettsyndrome.org prior written approval is required before a grantee makes larger budget modifications Email a request that details the proposed changes along with justification of these changes to [email protected]. We will notify you of our decision via email.
A no-cost extension request must include the following information in a signed letter:
- Why the project will not be completed in the scheduled period
- The number of months needed to complete the project
Once reviewed, the principal investigator will receive approval via email.
You may submit such a request to [email protected].
If you change institutions, notify Andrea Reed, Manager of Grants and Research – [email protected] via email in advance of the transfer. The following materials are required before Rettsyndrome.org will approve the transfer of your award to another institution:
- Acknowledgment letters from both the current and future institutions recognizing the transfer of work as well as funding
- A current financial report detailing expenditures to date and remaining funds
It is expected that the results of research supported by Rettsyndrome.org will be published as rapidly as possible in the open literature, consistent with high standards of scientific excellence and rigor. The responsibility for publication lies exclusively with the Principal Investigator and results of any work supported through Rettsyndrome.org may be published without prior review by Rettsyndrome.org.
Any publication arising in whole or in part from an Award funded by Rettsyndrome.org shall acknowledge funding support by Rettsyndrome.org. As soon as a manuscript is accepted for publication (whether during the term of the Award or after it has terminated) a copy of the publication along with the name of the journal and expected date of publication should be forwarded to Rettsyndrome.org’s Chief Science Officer at [email protected].
For research involving human subjects, the Sponsoring Institution shall ensure that the research proposal is reviewed and approved in writing by an Institutional Review Board constituted in accordance with current regulations promulgated by the United States Department of Health and Human Services and approved by the Department. Legally acceptable consent must be secured for all human subjects taking part in any research funded in whole or in part by Rettsyndrome.org. IRB approval forms from the Institutional Review Board must be submitted for the life of the grant (whether granted for its entirety from the outset, or renewed during the grant.)
For research involving animals, the Sponsoring Institution shall ensure compliance with applicable chapters of the Public Health Service Animal Welfare Policy, the NIH Manual for Grants and Contracts, and any and all requirements of the Sponsoring Institution concerning animal welfare. Approval forms from the Sponsoring Institution’s Animal Welfare Committee must be submitted for the life of the grant (whether granted for its entirety from the outset, or renewed during the grant.)