Rett Syndrome Symposium

Family Conference 2016

2016 Rett Syndrome Symposium

June 22-24, 2016

 

Registration is now closed                                                                                                           

Welcome!  It is our pleasure to invite you to join us for the 14th Rettsyndrome.org Rett Syndrome Symposium, an international, interdisciplinary meeting focused on recent advances in Rett syndrome research.  This conference - “Unity * Strength * Hope” - will include sessions of Fundamental Science, Translational and Clinical Research, and Neuro-Habilitation Research that will address the molecular, cellular and systems-level pathophysiology of Rett syndrome, potential treatment strategies and ongoing clinical trials and the Natural History study. Click here to see the final program.

We’re very excited to put together a program of outstanding basic and clinical scientists working on Rett syndrome and related fields of neurological research.  We invite you to participate in this very important meeting aimed to advance our understanding of the pathogenesis of Rett syndrome and bring forth discussion for developing new therapeutic strategies for this disease.

The meeting is sponsored by Rettsyndrome.org and will take place June 22-24, 2016 at the Eaglewood Resort & Spa in Itasca, IL.  This year, Rettsyndrome.org, the International Foundation for CDKL5 Research (IFCR), MECP2 Duplication, and the International FOXG1 Foundation will host the first-ever Related Disorders UNITY- STRENGTH-HOPE Conference  following the Research Symposium from June 24th through June 26th.

Symposium sessions:
This section will be updated with speakers as we confirm their participation.

Clinical Research – Wednesday, June 22, 2016

Co-chairs:
Walter Kaufmann, MD, Greenwood Genetic Center
Jeffrey Neul, MD, PhD, University of California San Diego

Speakers:
Daniel Glaze, MD, Baylor College of Medicine
Matthew Goodwin, PhD, Northeastern University
Walter Kaufmann, MD, Greenwood Genetic Center
Charles Nelson, PhD, Boston Children's Hospital
Jeffrey Neul, MD, PhD, University of California San Diego
Heather O'Leary, Boston Children's Hospital
Frank Symons, PhD, University of Minnesota

Fundamental Science – Thursday, June 23, 2016

Co-chairs:
Lucas Pozzo-Miller, PhD, University of Alabama at Birmingham
Zhaolan (Joe) Zhou, PhD, University of Pennsylvania

Keynote speaker:
Linda Van Aelst, PhD, Cold Spring Harbor Laboratory

Speakers in this session will be chosen from submitted abstracts.  A call for abstracts will be sent mid-April. Please submit by May 20, 2016.

Translational Research – Thursday, June 23, 2016

Co-chairs:
Dani Brunner, PhD, PsychoGenics, Inc.
Alysson Muotri, PhD, University of California San Diego

Confirmed Speakers:
Dani Brunner, PhD, PsychoGenics, Inc.
Michela Fagiolini, PhD, Boston Children's Hospital
Christopher Missling, PhD, Anavex Life Sciences Corporation
Alysson Muotri, PhD, University of California San Diego
Lucas Pozzo-Miller, PhD, The University of Alabama at Birmingham
Steven L. Roberds, PhD, Tuberous Sclerosis Alliance

Keynote Address – Thursday, June 23, 2016
Alan Percy, MD, University of Alabama at Birmingham

Neuro-Habilitation Research – Friday, June 24, 2016

Co-chairs:
Theresa Bartolotta, PhD, Stockton University
Pam Diener, PhD, Georgetown University

Confirmed Speakers:
Ishu Arpan, PT, PhD, Oregon Health University
Jewel Elias Crasta, MS, OT, Colorado State University
Yuri Danilov, PhD, University of Wisconsin-Madison
Kathryn Drager, PhD, CCC-SLP, Pennsylvania State University
Jessica Gosnell Caron, PhD, CCC-SLP, Pennsylvania State University
Peter Marschik, PhD, Medical University of Graz
Gillian Townend, M.Phil, CertMRCSLT, Maastricht University

Natural History Study – Friday, June 24, 2016

Presented by the NHS team leaders

This session will also be open to families attending the Related Disorders Family Conference.

Target Audience:

  • Academic and industry scientists and clinicians engaged in basic and drug discovery research for Rett syndrome and related fields of neurological research and other disorders
  • Business development and licensing professionals
  • Allied health care professionals
  • Young investigators and graduate students

Lodging:
Eaglewood Resort and Spa
1401 Nordic Road
Itasca, Illinois 60143

Discounted Room rate: $149/night resort fees included

Phone # and Email

Direct #:
630-694-5923
smabeley@eaglewoodresort.com
Fax 630-694-6096

All requests are subject to availability of the contracted room block.

Click below for more information about Eaglewood Resort and Spa:

 

Eaglewood
Transportation

 

Eaglewood
Directions

 

Eaglewood Area
Attractions

 

Eaglewood Local
Restaurants

 

Questions? 

Contact
Janice Ascano, PhD
    Manager of Grants & Research
    jascano@rettsyndrome.org