GO ALL IN FOR RETT
ON RARE DISEASE DAY 2.28.22!

Favorite Things Edition

What are some of your favorite things about your loved one with Rett?
Share them with us!

 

“Her smiles light up a room. That’s my favorite thing about Anne.”—Jack Kuwick, father of Ann.

We’d love to hear from you on February 28—Rare Disease Day! Share your photo, video, or status update on Facebook and tag @RettSyndrome! On Instagram, tag @rettsyndromeorg. Throughout the day, we’ll feature many of your posts on our Facebook and Instagram Stories!

SHARE YOUR FAVORITE THINGS


Need some inspiration? Listen to this story from one of our amazing Rett families!

“She is fun. She loves to go. She loves to do. She is always up for a new adventure. She’s brave. She will try things that I’m scared to try … The list could go on and on. She’s pretty darn amazing. I am lucky that I’m I get to be her mom.”—Sherry Brady, mom to Lauren

Thousands of children and adults suffer from the limitations and challenges of living with Rett syndrome. They need you to spread the word about Rett syndrome on Rare Disease Day by sharing some of YOUR FAVORITE THINGS.

As a rare disease, Rett syndrome affects 1 in 10,000 girls and even fewer boys. Countless people across the country still haven’t heard of Rett syndrome and we want them to hear from you!

Share with them some of YOUR FAVORITE THINGS about your loved one with Rett!

SHARE YOUR FAVORITE THINGS


Want to set up a fundraiser? Head over to Facebook using this link and all the fields are already set up.

You can personalize it as much as you like! And Facebook pays all the processing fees for you, so 100% of your donation goes directly to IRSF.

How will you go ALL IN for Rett on Rare Disease Day?

GIVE TO ADVANCE A CURE