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Upcoming Events

1:00 pm RettEd: Rett Syndrome Communicat...

Mar 9 @ 1:00 pm

Communication is one of Rett syndrome’s biggest challenges. As such, individuals with Rett struggle to connect, build relationships, and make their wishes known. This critical RettEd webcast can help, no matter where a person is … Read More

Apr

Tue

1:00 pm RettEd: Let’s Hear It For The Bo...

RettEd: Let’s Hear It For The Bo...

Apr 13 @ 1:00 pm

We’ve learned a lot since the ‘80s—and it’s time to set the record straight! Dr. Bernard Suter of Texas Children’s Hospital will share what we know about males with Rett, males with MECP2 duplication, and … Read More

Apr

Fri

1:00 pm RettEd: What Hurts? Part 2: Addr...

RettEd: What Hurts? Part 2: Addr...

Apr 23 @ 1:00 pm

How do parents and caregivers recognize and treat pain in a loved one with Rett, especially if communication is a challenge? This RettEd can help! Dr. Tim Feyma and Dr. Art Beisang of Gillette Children’s, … Read More

Apr

Fri

all-day The Great Rett Shootout

The Great Rett Shootout

Apr 30 all-day

We are excited to be able to host the event this Spring! We will be following the guidelines of the CDC and may have to implement social distancing and face coverings dependent upon the CDC … Read More

May

Mon

11:00 am 8th Annual Charamella Golf Tourn...

8th Annual Charamella Golf Tourn...

May 10 @ 11:00 am

Mark was a devoted husband, father and friend that touched many lives through his enthusiasm and love of life. Every job, school, team or organization that he was involved with became a part of him. … Read More