Our Partners

We believe it takes an army of multi-talented people using every ounce of creativity, strength, know-how and energy to win the battle against Rett syndrome. We must be united in this effort.

We would like to thank the following organizations for exceptional financial and in-kind support. Let's celebrate our collaboration and make an even greater impact.

To learn more about partnering with Rettsyndrome.org, please email Gordy Rich. Help End Rett!

2015 Funding Partners

HER Heroes ($50,000+)
 

Albemarle Foundation

Albemarle Foundation serves as the primary source and mechanism for philanthropic giving of Albemarle, the world’s leading developer, manufacturer and marketer of complex chemicals. Since its beginning, the Foundation has delivered over $15 million to more than 200 deserving agencies.

 

(Italy)

Pro RETT Ricerca

Pro RETT Ricerca is an Italian association of parents of girls suffering from Rett syndrome, dedicated to funding Rett syndrome research. One of our greatest accomplishments is our contribution that helped to launch the San Raffaele Rett Research Center, the first Italian research laboratory solely dedicated to Rett syndrome research.

 

Reading Rock

 

Rett Syndrome Association of Massachusetts, Inc.

Rett Syndrome Association of Massachusetts, Inc. (RSAM) is a non-profit organization that was founded by parents at a time when little was known about the disorder. Its mission, from its inception, has been to provide support and information to families; raise funds to accelerate biomedical research; and to raise public awareness among medical and educational communities.

 

Robert & Adele Schiff Foundation

 

 

HER Knights ($25,000 - $49,999)
Acre Investment Company, LLC Gary Sakwa Liv Trust
Boston Bruins New England Sports Network
Boston Properties, LP New Jersey Rett Syndrome Association
Brown & Root Industrial Services, LLC Schwab Charitable Fund
Casting 4 A Cure The Color Run, LLC
Circle K - Midwest The Leroy Schecter Foundation, Inc.
Dani Lococo Foundation International Foundation for CDKL5 Research
Delaware North Companies, Inc.  
Ella Foard Foundation for Rett Syndrome  
Fidelity Charitable Gift Fund  

 

HER Angels ($10,000 - $24,999)
Accenture, LLP Manhattan Beer Distributors, LLC
Allen, Matkins, Leck, Gamble, Mallory & Natsis, LLP New England Development
Anne and Paul Marcus Family Foundation Newmark & Company Real Estate, Inc
Bank of America Charitable Gift Fund T.S. & Juanita Ballance Foundation
Barack, Ferrazzano, Kirschbaum & LLP Rochester Area Community Foundation
Beta Sigma Phi Rocky Mountain Rett Association
Brookfield Financial Properties, LP Seyfarth Shaw Attorneys, LLP
Callahan, Inc. Southern Ionics, Inc.
ICAP Services North America, LLC Stagnaro Distributing, Inc.
IMC Chicago Charitable Foundation Suffolk Cares, Inc.
Intercontinental Charities T.S. & Juanita Ballance Foundation
Intercontinental Management Corporation The Boeing Company
J. Calnan & Associates, Inc. The Cornelius F. Doolan Memorial Fund
JKK Charity Fund The Huntingdon Valley-Churchville Rotary Club
Main Street Bank Transwestern RBJ, LLC

 

Natural History Study Partner
National Institutes of Health (NIH)

 

In-kind Contributors
Akin, Gump, Strauss, Hauer & Feld, LLP Reading Rock
Attention Span Media University of Alabama Birmingham
Baylor University University of California San Diego
Boston Children's Hospital Wiley Ryan
Greenwood Genetics Center  

 

2014 Funding Partners

HER Heroes ($50,000+)
 

Albemarle Foundation

Albemarle Foundation serves as the primary source and mechanism for philanthropic giving of Albemarle, the world’s leading developer, manufacturer and marketer of complex chemicals. Since its beginning, the Foundation has delivered over $15 million to more than 200 deserving agencies.

CureRett.org

Cure Rett

Cure Rett is a charity registered in England and New Wales, created to address two important needs in the Rett syndrome community. Cure Rett provides care for families dealing with a Rett syndrome diagnosis and raises funds to support researchers in their efforts to develop treatments and find a cure for Rett syndrome.

 

(Italy)

Pro RETT Ricerca

Pro RETT Ricerca is an Italian association of parents of girls suffering from Rett syndrome, dedicated to funding Rett syndrome research. One of our greatest accomplishments is our contribution that helped to launch the San Raffaele Rett Research Center, the first Italian research laboratory solely dedicated to Rett syndrome research.

 

Rett Syndrome Association of Massachusetts, Inc.

Rett Syndrome Association of Massachusetts, Inc. (RSAM) is a non-profit organization that was founded by parents at a time when little was known about the disorder. Its mission, from its inception, has been to provide support and information to families; raise funds to accelerate biomedical research; and to raise public awareness among medical and educational communities.

 

HER Knights ($25,000 - $49,999)

Acre Investment Company, LLC

 

New Jersey Rett Syndrome Association

The mission of the New Jersey Rett Syndrome Association is to contribute towards an improved quality of life for girls and women affected by Rett syndrome. One of the ways of achieving this mission is to provide a network of Rett syndrome specialists serving the New Jersey tri-state area. We believe that by raising awareness, we can foster public attitudes conducive to early intervention, treatment, support and research of Rett syndrome.

 

 

HER Angels ($10,000 - $24,999)
Allen, Matkins, Leck, Gamble, Mallory & Natsis, LLP Main Street Bank
The Anastasi Fund Manhattan Beer Distributors, LLC
Brookfield Financial Properties, LP Pinnacle Health System
Casting 4 A Cure PotashCorp
The Cornelius F. Doolan Memorial Fund Rochester Area Community Foundation
Ella Foard Foundation for Rett Syndrome Southern Ionics, Inc.
Hershey Entertainment & Resorts Company T.S. & Juanita Ballance Foundation
ICAP Services North America, LLC Tobii Assistive Technology, Inc.
IMC Chicago Charitable Foundation Transwestern RBJ LLC
JKK Charity Fund United Way Of Buffalo & Erie County

 

Natural History Study Partner
National Institutes of Health (NIH)

 

In-kind Contributors
Attention Span Media Reading Rock
Baylor University University of Alabama Birmingham
Boston Children's Hospital University of California San Diego
Greenwood Genetics Center Wiley Ryan

 

2013 Partners

HER Heroes ($50,000+)
 

Albemarle Foundation

Albemarle Foundation serves as the primary source and mechanism for philanthropic giving of Albemarle, the world’s leading developer, manufacturer and marketer of complex chemicals. Since its beginning, the Foundation has delivered over $15 million to more than 200 deserving agencies.

 

Casting 4 A Cure

Casting 4 A Cure started with a need to help a little girl live a life up to her full potential. And an idea to connect that need with an industry filled with compassionate, caring, and generous people. By combining two of his passions, fly fishing and fund-raising, Bill Farnum and his wife Beth set off to help save their daughter Ella from a cruel and destructive disorder that has taken much from her and thousands of girls like her.

 

(Italy)

Pro RETT Ricerca

Pro RETT Ricerca is an Italian association of parents of girls suffering from Rett syndrome, dedicated to funding Rett syndrome research. One of our greatest accomplishments is our contribution that helped to launch the San Raffaele Rett Research Center, the first Italian research laboratory solely dedicated to Rett syndrome research.

 

Rett Syndrome Association of Massachusetts, Inc.

Rett Syndrome Association of Massachusetts, Inc. (RSAM) is a non-profit organization that was founded by parents at a time when little was known about the disorder. Its mission, from its inception, has been to provide support and information to families; raise funds to accelerate biomedical research; and to raise public awareness among medical and educational communities.

 

Robert and Adele Schiff Foundation

Private family foundation based in Cincinnati, OH, supporting the arts, education, health organizations, human services, children and youth services, including a children's hospital, and social services.

 

Rossin Foundation

Private family foundation based in McMurray, PA, supporting hospitals and organizations involved with arts and culture, patient services, and senior citizens.

 

HER Knights ($25,000 - $49,999)

Claire's Crusade

Claire's Crusade is leading the charge to improve the quality of life of our silent angels as they battle Rett syndrome. As a 501(c)(3) non-profit tax exempt organization, Claire's Crusade is dedicated to raising funds for treatment of this debilitating neurodevelopmental disorder and to support cutting edge research efforts to develop a cure. Claire's Crusade is committed to increasing awareness and providing resources for families faced with the uncertainty this affliction can bring.

Circle K- Midwest

For more than 50 years, Circle K has been one of North America’s most popular and successful operators of convenience stores. Today, there are more than 3,300 Circle K stores across the USA and over 4,000 international locations.

Dani Lococo Foundation

Founded in 2010, The Dani Lococo Foundation was inspired by Dani's amazing courage. The foundation is dedicated to raising awareness and finding a cure for Rett syndrome, physically disabling neurological disorder, in the hope that one day our daughter and the daughters of others will live a normal life.

 

New Jersey Rett Syndrome Association

The mission of the New Jersey Rett Syndrome Association is to contribute towards an improved quality of life for girls and women affected by Rett syndrome. One of the ways of achieving this mission is to provide a network of Rett syndrome specialists serving the New Jersey tri-state area. We believe that by raising awareness, we can foster public attitudes conducive to early intervention, treatment, support and research of Rett syndrome.

 

HER Angels ($10,000 - $24,999)
Accenture, LLP Johnson Charitable Gift Fund
Akin, Gump, Strauss, Hauer & Feld, LLP Main Street Bank
Allegiance Retail Services, LLC Minnesota Rett Syndrome Association
Allen, Matkins, Leck, Gamble, Mallory & Natsis, LLP PSK Supermarkets, Inc.
Baton Rouge Area Foundation Randstad Professionals
Beta Sigma Phi Richards, Barry, Joyce & Partners, LLC
Brookfield Financial Properties, LP Rocky Mountain Rett Association
CDKL5 Stagnaro Distributing, Inc
EP Minerals, LLC South Jersey Charitable Foundation
Harter Secrest & Emery, LLP TE Connectivity
ICAP Services North America, LLC T.S. & Juanita Ballance Foundation
IMC Chicago Charitable Foundation Zuckerman Spaeder, LLP
International Foundation for CDKL5 Research