Our Mission

To accelerate full spectrum research to cure Rett syndrome and empower families with knowledge and connectivity


Rettsyndrome.org will coordinate, cultivate, accelerate, and fund research that will produce a cure for Rett syndrome and reveal and develop treatments that will make the lives of people living with Rett syndrome richer and free of pain and discomfort.



Rettsyndrome.org will assist families of individuals living with Rett syndrome by providing them with connections to critical and useful information, programs, services, and support from diagnosis to day-to-day life.



Rettsyndrome.org will advocate for and raise awareness about individuals with Rett syndrome so the scientific and medical community, policy makers, educators, care givers, and the general public can more thoroughly know, understand, and be motivated to help the research efforts and individuals dealing with Rett syndrome on a daily basis.

We accomplish our mission through


To accomplish this core mission, the priority of Rettsyndrome.org's leadership will be effective, assertive, comprehensive, and strategic fundraising.



Rettsyndrome.org will operate in accordance with those generally accepted principles necessary to maintain or achieve a Four Star Charity Navigator rating.

About RettSyndrome.org

Rettsyndrome.org is a 501c(3) non-profit corporation registered as The International Rett Syndrome Foundation and established in 2007 through the strategic merger of the Rett Syndrome Research Foundation and the International Rett Syndrome Association.