Our Role & Impact
Rettsyndrome.org is a 501c(3) non-profit corporation registered as The International Rett Syndrome Foundation and established in 2007 through the strategic merger of the Rett Syndrome Research Foundation and the International Rett Syndrome Association.
We invest in research
Rettsyndrome.org will coordinate, cultivate, accelerate, and fund research that will produce a cure for Rett syndrome and reveal and develop treatments that will make the lives of people living with Rett syndrome richer and free of pain and discomfort.
Recent funded projects
About the Rett syndrome symposium
Advocacy & awareness
Rettsyndrome.org will advocate for and raise awareness about individuals with Rett syndrome so the scientific and medical community, policy makers, educators, care givers, and the general public can more thoroughly know, understand, and be motivated to help the research efforts and individuals dealing with Rett syndrome on a daily basis.
Support a fundraiser
Become an Advocate
"Today much of the discovery based research shows that reversal of abnormal Rett biology is possible through both genetic and pharmacologic intervention. But we must also prioritize the development of forward looking habilitation therapies. As we continue to bring these drug treatments into the clinic to correct the biology, we must push equally hard to discover the best methodologies to reset the neurology. These avenues of therapeutic intervention must converge as they are both fundamental to improving the lives of all of the girls and women with Rett syndrome."
- Steven Kaminsky, Ph.D., Rettsyndrome.org Chief Science Officer