Rett Gazette
IRSF’s fall publication features updates and news from the Rett syndrome community, including advancements in research, real-world experiences with treatments, personal stories from the community, and more.
Latest Release
2024 Rett Gazette
Twenty-five years ago, the Rett research community was rocked by a landmark discovery: mutations in the MECP2 gene caused Rett syndrome. In this year’s edition of the Rett Gazette, we reflect on the significance of that discovery and how a genetic basis for Rett syndrome fundamentally changed how scientists and researchers have approached Rett since. We also give updates on the latest research and clinical trials, share in-depth stories of hope from our community, and celebrate all that we have accomplished—together—this past year.
The Rett Gazette is offered free to the Rett syndrome community. Scroll down to find links to resources highlighted in this issue or use the buttons below to download the digital version or request a printed version be mailed to you (U.S. addresses only).
In This Issue
Choose a section:
Research
- Pg. 4: Huda Zoghbi is quoted from Relentless desire to help Rett syndrome patients, as told by Huda Zoghbi
- Pg. 6: “What is Gene Therapy, and What Can it Do?” presented by Steven Gray, PhD at ASCEND 2024
- Pg. 7: Clinical Trials and Rett Research Pipeline
- Pg. 8: 2024 IRSF Rett Syndrome Scientific Meeting Recap
- Pg. 9: DAYBUE in the Real World (visit daybue.com for information about DAYBUE)
- Pg. 10: New Clinical Care Resources:
Families
- Pg. 13: ASCEND 2024 Photo Album
- Pg. 16: My Rett Ally
- Pg. 17: Communication in Rett Syndrome Resources:
- Pg. 18: Share your Story
Advocacy
- Pg. 12: Make your voice heard for Rett
Get Involved
- Pg. 21: Strollathons
- Pg. 22: Fundraising Resources:
- Pg. 23: Rett Educational Events
A Special Thank You
We would like to thank the following individuals for contributing to the production of this year’s issue:
Amanda Avant
Theresa Bartolotta
Katie Busch
Megan Case
David Creelman
Meghan Cordeiro
Lexy Dee
Andrea Etkie
Tim Frank
Lauren Forest
Brian Gearin
Steven Gray
Kristine Hess
Jinu Rachel John
Drew Jones
Melissa Kennedy
Ashley Kumar
Ellie Morgan
Sarah Morrison
Kelly Naranja
Melissa Nues
Cindee Phillips
Joshua Poulsen
Shannon Schiebel
Ryan Sheedy
Huda Zoghbi
The IRSF Team
Rett Gazette Mailing Request
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