Press Releases | International Rett Syndrome Foundation

October 28, 2025

IRSF Launches Family Listening Sessions to Strengthen Support for Rett Community

New initiative invites parents and caregivers to share their experiences, ensuring that programs and resources reflect the real needs of families.

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IRSF Expands Executive Team to Meet the Moment for the Rett Community

Dominique Pichard, M.D., returns as Chief Science Officer, and Staci Almager joins as Chief Development Officer.

IRSF Expands Scientific Advisory Board with Three Leading Experts

Renowned leaders in neuroscience, gene therapy, and translational research join IRSF's Scientific Advisory Board to help accelerate bold investments in Rett syndrome treatments and cures.

IRSF Names Laura Hameed as Chief Executive Officer

Accomplished nonprofit and biotech leader brings decades of rare disease experience to guide IRSF's next chapter of impact and growth.

IRSF Awards Nearly $2 Million in Grants to Advance Rett Research

This funding supports seven groundbreaking projects investigating Rett syndrome's pathology and potential new treatments.

IRSF Leadership Update

After a 7-year tenure, Melissa Kennedy stepped down as CEO at the end of 2024. Board member and Rett mom, Leslie Mehta, will act as interim CEO as a national search for a new leader commences.

IRSF Welcomes Two to Board of Directors

New board members Parthy Evans and Steve Marconi will enhance IRSF's mission to advance Rett syndrome research and support for families.

Center of Excellence Clinic Network Expanded

Three additional clinics recognized for best-in-class Rett syndrome care.

IRSF Announces Expansion of Scientific Leadership

The new leadership appointments include a key promotion and new hire to advance research and clinical development for Rett syndrome.

Introducing My Rett Ally: A New Tool to Support Caregivers

My Rett Ally, a web application powered by mejo, is specifically designed for Rett syndrome patients and families to simplify and enhance care coordination.

IRSF Press Releases