Press Releases | International Rett Syndrome Foundation

March 11, 2025

IRSF Awards Nearly $2 Million in Grants to Advance Rett Research

This funding supports seven groundbreaking projects investigating Rett syndrome’s pathology and potential new treatments.

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IRSF Leadership Update

After a 7-year tenure, Melissa Kennedy stepped down as CEO at the end of 2024. Board member and Rett mom, Leslie Mehta, will act as interim CEO as a national search for a new leader commences.

IRSF Welcomes Two to Board of Directors

New board members Parthy Evans and Steve Marconi will enhance IRSF's mission to advance Rett syndrome research and support for families.

Center of Excellence Clinic Network Expanded

Three additional clinics recognized for best-in-class Rett syndrome care.

IRSF Announces Expansion of Scientific Leadership

The new leadership appointments include a key promotion and new hire to advance research and clinical development for Rett syndrome.

Introducing My Rett Ally: A New Tool to Support Caregivers

My Rett Ally, a web application powered by mejo, is specifically designed for Rett syndrome patients and families to simplify and enhance care coordination.

IRSF Welcomes Three New Members to its Board of Directors

Mary Engel, Laura Stoppel, and Steve Wood have been appointed to the IRSF Board, effective July 1, 2023.

IRSF Establishes Research Fund for Males with Rett Syndrome

The fund is established thanks to an inaugural gift from the Otis Family in honor of their son, Barrett.

IRSF Awards $4.4M in Rett Syndrome Research Grants

Our commitment to setting up the next wave of Rett breakthroughs continues with the largest annual investment in our Foundation’s history.

IRSF Receives $500,000 Donation from Vezbi Super App

Along with the donation, Vezbi will be creating custom Micro-apps and Communities for use by IRSF and the community of families impacted by Rett syndrome that the foundation serves.

IRSF Press Releases