On December 17th 2013, our daughter Magnolia, was diagnosed with Rett syndrome. She was 3 years old when she was diagnosed. This is a disorder that happens spontaneously, randomly, and to people on all walks of life.
Rett syndrome is a genetic neurological disorder occurring almost exclusively in females and becoming apparent after 6-18 months of early normal development. The resulting regression leads to lifelong impairments, including lost speech, seizures, scoliosis, irregular breathing patterns, and more than half of the children and women lose the ability to walk. Those diagnosed with Rett syndrome require maximum assistance with basic daily activities.
We believe that a cure is very possible in her lifetime. But not without the support of people like you. You can save her and thousands of other little girls around the world. Your donation will help fund essential research of effective treatments and to find a cure for Rett syndrome.
This cause is very important to us and we all appreciate your help as we fight for a cure for Rett syndrome!
Please donate to our efforts to support IRSF in finding a cure!