All About Maggie

Maggie is an 11 year old young lady and for the most part very happy and healthy. She was 6 months old when she had her first life threatening seizure and when we first started to notice things weren't quite right. She had several more seizures in the later months. At the age of 18 months I brought her to her pediatrician and had her evaluate her. We couldn't figure out what was wrong. She had another seizure and we were transported to children's hospital in Boston where we heard Rett syndrome for the first time. What a scary time with very little information. We have a wonderful team of doctors that help us with all our questions now, but it's still scary. She has lost so much of her abilities but we are hopeful for the future. 


Fun Fact About Maggie: Maggie loves strings, music and M&M's.

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Support Maggie's fight against Rett syndrome. Donate today in honor of Maggie. All money will go to to help accelerate full spectrum research to cure Rett syndrome and empower families with knowledge and connectivity. 

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