Healthcare Providers
The International Rett Syndrome Foundation (IRSF) equips healthcare professionals with the tools, knowledge, and resources needed to provide exceptional care for individuals with Rett syndrome. Whether you are a physician, therapist, or specialist, IRSF offers programs and materials to enhance your expertise and improve patient outcomes.
Find information on the latest treatment guidelines and emerging therapies for Rett syndrome. IRSF provides evidence-based resources to help healthcare providers tailor care plans to each patient’s unique needs.
The IRSF Rett Syndrome Registry™ is a comprehensive study tracking the progression of Rett syndrome through expert and caregiver-reported data. Learn more about this effort to enhance care guidelines, inform clinical trials, and accelerate the development of effective treatments.
IRSF designates a network of clinics across the United States as Centers of Excellence for Rett syndrome care and research. Learn more about the benefits and requirements of this designation, and connect with a network of experts delivering comprehensive, multidisciplinary care.
Advance your understanding of Rett syndrome with Continuing Medical Education (CME) courses. These online accredited courses provide the latest insights into diagnosis, treatment strategies, and symptom management, enabling you to deliver the best care possible.
Effective communication is a cornerstone of care for individuals with Rett syndrome. IRSF offers training and resources tailored to speech-language pathologists and other specialists to enhance their ability to support patients in developing meaningful connections.
Give them the best opportunity for a better life.
Your investment funds trailblazing research toward Rett treatments and a cure, enables family empowerment, and helps raise awareness about this rare disorder that impacts nearly every aspect of life.