Explore Upcoming Events

Our event calendar features a comprehensive list of community events, fundraisers, educational opportunities, and more, hosted by both IRSF and the Rett community.

The Great Rett Shootout

Blackwood Sporting Co. 11400 FM 2854 Road, Conroe, TX, United States

You are invited to join us on the range as we raise money in the fight against Rett syndrome.

$250

IRSF RettEd Day with Children’s Hospital Los Angeles (CHLA)

Children's Hospital Los Angeles (CHLA) 4650 Sunset Boulevard, Los Angeles, CA, United States

Our RettEd Day at CHLA, an IRSF Center of Excellence, is an immersive, full-day educational event for everyone wanting to connect with experts in the field of Rett syndrome.

26th Annual Run for Rett

Busse Woods Forest Preserve Grove 26, Elk Grove Village, IL, United States

Walkers and runners of all abilities are invited to join us for the 26th annual Run for Rett 5K Run/Walk and 1 Mile Fun Run. Proceeds from the event benefit the International Rett Syndrome Foundation.

$30

Mark Charamella Memorial Golf Outing

Westover Country Club 401 S Schuylkill Ave., Norristown, PA, United States

You are invited to the 12th annual Mark Charamella Memorial Golf Tournament! The tournament raises money for IRSF in honor of Mark Charamella and his daughter, Deirdre, who lives with Rett syndrome.

Enchanted Dreams Fantasy Gala for Rett

The Grove 496 Stetson Road, Newport, ME, United States

Come dressed to impress as your favorite fantasy character from a book, movie, or your imagination! Join us for an unforgettable evening of food, dancing, and fun all for a good cause.

2025 IRSF Rett Syndrome Scientific Meeting

The Westin Boston Seaport District 425 Summer Street, Boston, United States

The scientific community is invited to join us in Boston for the 2025 IRSF Rett Syndrome Scientific Meeting, the only annual, global, and comprehensive research meeting focused exclusively on Rett syndrome.

2025 RettAway

San Diego Area San Diego, CA, United States

IRSF’s RettAway is a destination vacation for families to spend time together and build connections with other members of our Rett community.

POUND® Out Rett

Jewish Community Center - St. Louis 2 Millstone Campus Drive, St. Louis, United States

Join us for the third annual POUND® Out Rett event at the JCC! Channel your inner rockstar in POUND® - an exhilarating full body workout inspired by the energizing and […]

$25

IRSF RettEd Day with University of Alabama at Birmingham

University of Alabama at Birmingham 1600 7th Avenue South, Birmingham, AL, United States

Our RettEd Day at UAB/Children's of Alabama, an IRSF Center of Excellence, is an immersive, full-day educational event for everyone wanting to connect with experts in the field of Rett syndrome.

IRSF RettEd Day with Boston Children’s Hospital

Boston Children's Hospital Boston, MA, United States

Our RettEd Day at Boston Children’s Hospital, an IRSF Center of Excellence, is an immersive, full-day educational event for everyone wanting to connect with experts in the field of Rett syndrome.

Charlotte’s Raise a Glass for Rett

Lone Oak Brewery 5000 Olney Laytonsville Road, Olney, MD, United States

Join us for a day of camaraderie for a cause! We'll be out at Lone Oak Brewery to raise money for Rett syndrome research. Register today and join the fun.

$75

Don't see your event listed?

Share your event with us! Submit the details of your fundraiser, awareness event, or educational opportunity to be featured on our event calendar and reach the Rett syndrome community.

Stroll to Create a World Without Rett

The Strollathon is a nationwide IRSF fundraiser that brings together local communities to raise critical funds towards treatments and cures for Rett syndrome. These family-friendly events are powered by dedicated volunteers, sponsors, donors, and Rett families. Together, we raised nearly $17M (and counting!) towards impactful family support and groundbreaking research initiatives.