THANK YOU FOR YOUR FEDERAL ADVOCACY EFFORTS

We are thrilled to share the recent announcement that our efforts in 2022 resulted in $663,000 in federal funding for Rett syndrome research! Thank you for your advocacy!

As we begin our efforts to secure our position for 2024, we can see this success as proof that, though small, we are mighty and we can change the world for our loved ones with Rett.

Thank you to our Congressional champions: Representatives Abigail Spanberger, VA and Brad Wenstrup, OH, who sponsored our efforts, as well as Representatives Al Green, TX, Danny K. Davis, IL, Jim Himes, CT, Jimmy Penetta, CA, Lloyd Doggett, TX, Lucy McBeth, GA, Nydia M. Velázquez, NY, Shelia Jackson Lee, TX, Eleanor Holmes Norton, DC, Susan Wild, PA, and Sean Casten, IL. Your support made a difference in the lives of our loved ones with Rett syndrome.

If you are interested in participating in our advocacy efforts, please contact Katie Busch at [email protected].
THANK YOU for advocating to get us closer to our vision of a world without Rett syndrome!