Welcome to Rettsyndrome.org. We are glad you found us. You have come to the right place for trusted information, family support, an exciting and solid research program and most importantly you have found HOPE!
Connect with our Family Empowerment team to get the individualized attention from parents just like you who are committed to providing support throughout this journey.
These networks are primarily email based communities or Facebook groups that cater to the unique needs of a variety of individuals who love and care for someone with Rett syndrome.
Educators Network Grandparents Network Dads Network Single Parents Network Life After Rett Network
The Rettnet is provided at no charge by Rettsyndrome.org to encourage a free exchange of information on various aspects of Rett syndrome awareness, care, research, treatment and support. Thank you for keeping the topics Rett-related, and for keeping this an open and supportive environment for all participants.
Navigating the rich resources available to help your child and your family can feel overwhelming. That is why we have compiled a list of resources available by state as well as resources that are common for all. Our goal is to be comprehensive, not intimidating. Please contact Rettsyndrome.org if you need help filtering this information. We are here to help.
Connect with Rett syndrome organizations and foundations around the world.
Nuestra representante de los recursos del estado se llama Yazmin Garcia. Puede enviar un correo electrónico a Ella. O conectarse con la Señora Garcia por teléfono: 17089724484. Tenemos información sobre el síndrome de rett en español en nuestra página web aquí
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Rettsyndrome.org is a 501c(3) non-profit corporation registered as the International Rett Syndrome Foundation