New Mexico

Family Empowerment Representatives

Family Empowerment Representatives are volunteers who provide emotional support, information and resources to families affected by Rett syndrome. Contacting them should be your first step.

National Family Empowerment Representative

Samantha Brant – Family & Community Engagement Manager, Rettsyndrome.org
sbrant@rettsyndrome.org  1-913-221-8157

Family Empowerment Representative

Alicia Cortez, volunteer Family Empowerment Representative
arcortez@hotmail.com 1-505-429-2221

Treatment and Research Centers

Your child may be able to participate in studies and trials to advance treatment and knowledge of Rett syndrome. There are clinics specializing in Rett syndrome that can help you provide Rett-specific care for your child.

Clinical Trials

Rett syndrome clinical trials are available at various stages in the process. Please visit our Clinical Trial page for current enrollment status.

Clinics

Rett Clinic at Children's Hospital Colorado

The Rett Clinic at Children’s Colorado was established in 2011 thanks to a generous gift from the Rocky Mountain Rett Association. Many doctors and specialists come together to provide coordinated care and convenience for the child and family (about 14 providers are at the first appointment).

The Rett Clinic is located in the Multidisciplinary Clinic at Children’s Colorado, which means that the doctors and specialists come directly to the patient and family (and not the other way around) to provide streamlined care for children with complex needs.  The clinic is led by Director, Dr. Tim Benke. For appointments, contact Tristen Dinkel, RN, Clinic Coordinator at rettclinic@childrenscolorado.org or call 720-777-4363.

Watch the Colorado Clinic video.

State Agencies & Resources

Local Service Agencies

Yes to New Mexico (YesNM)

Visit Yes to New Mexico Website
1-800-283-4465
YesNM is a website to help quickly check eligibility and apply for or renew public assistance programs.

Human Services Department (HSD)

Visit Human Services Department (HSD) Website
HSD serves over 800,000 New Mexicans each month and has many programs and resources to help.

State Medicaid

Centennial Care Program

Visit Centennial Care Program Website 
1-855-637-6574
This is a Medicaid program that is available through the Human Services Department (HSD). Its aim is to modernize the Medicaid program in New Mexico and to provide all necessary services. You can apply online through YesNM or visit your local field office.
Field Offices

Developmentally Disabled Waiver (DD Waiver)

Visit Developmentally Disabled Waiver (DD Waiver) Website
1-800-283-5548
The DD Waiver serves individuals with specific related conditions and developmental disabilities that occur before the age of 22. You can apply by phone.

Medically Fragile Waiver (MF Waiver)

Visit Medically Fragile Waiver (MF Waiver) Website
The MF Waiver serves individuals who have been diagnosed with a medically fragile condition before reaching age 22, and, who have a developmental disability or delay or who are at risk for developmental delay.

Home and Community-Based Services Waiver application 

Visit Home and Community-Based Services Waiver Application Website
This is the application for all waivers in New Mexico.

Education

Public Education Department, Special Education Bureau

Visit Public Education Department, Special Education Bureau Website
The Special Education Bureau handles special education services in New Mexico. Check your local school district for specific information in your area.

Developing Quality IEP's Technical Assistance Manual

Visit Developing Quality IEP’s Technical Assistance Manual Website
This manual is published by the New Mexico Public Education Department to help families with the IEP process.

Conservatorship

New Mexico Conservatorship Forms

Visit New Mexico Conservatorship Forms Website

Transition to Adult Services

Graduation Options for Students with Disabilities Technical Assistance Manual

Visit Graduation Options for Students with Disabilities Technical Assistance Manual Website
This manual was developed by the New Mexico Public Education Department to help school staff and families with the transition process.

Handicap Placard

DMV New Mexico 

Visit DMV New Mexico Website
To obtain a handicap placard in New Mexico, complete the application and submit to a physician for a signature. Take the application to your local MVD office to be processed.

Visit Placard Forms
There is a form available here for the application for a handicap placard in New Mexico.

If you have favorite resources to share with others, please email that information and your experience to areed@rettsyndrome.org.

Legal Resources & Information

The ARC of New Mexico

Visit The ARC of New Mexico Website
1-800-358-6493
The ARC of New Mexico strives to improve the quality of life for individuals with disabilities.

Additional Resources

New Mexico Rettsyndrome.org Families Facebook page

Click and ask to join!

Parents Reaching Out

Visit Parents Reaching Out Website
1-800-524-5176
Parents Reaching Out provides case by case care for families. It is a non-profit organization that works with parents, caregivers, educators, and other professionals to promote healthy, positive and caring experiences for families and children.

Rocky Mountain Rett Association

Visit Rocky Mountain Rett Association Website
The Rocky Mountain Rett Association (RMRA) was founded for three reasons; to fund research for the development of treatments & cures for Rett Syndrome and related MeCP2 disorders, to support families suffering from Rett, and to raise awareness for Rett Syndrome.

Rocky Mountain Rett Association
PO Box 1294
Morrison, Colorado 80465
(720) 234-7673
info@rmrett.org