GO ALL IN for RETT!
Join us in October for Rett Syndrome Awareness Month!
Thousands of children and adults suffer from the limitations and challenges of living with Rett syndrome. They need YOU to spread the word about Rett syndrome this month.
As a rare disease, Rett syndrome affects 1 in 10,000 girls and even fewer boys. Countless people across the country still haven’t heard of Rett syndrome, which is why October is crucial for awareness, advocacy, and education.
Spread the word. Share your story. Be their voice.
We’re ALL IN. Are you?
Here’s Here’s How You Can Be #ALLINForRett
During Rett Syndrome Awareness Month
Rock the Temporary Tattoos
Apply the tattoos, take a selfie, and share it on your social media channels using #OverPowerRett.
Did you know that we’re in the process of asking all 50 governors to honor our effort by signing proclamations declaring October to be Rett Syndrome Awareness Month in their states? Want to help us reach our goal? Click here to get started!
LEADING THE WAY
WE ARE ALL IN FOR A CURE.
IRSF is funding critical research that moves the needle toward a cure. We recently launched three initiatives designed to support our research focus:
- Rett Research Ready™ This program helps parents find a clear path to clinical trials and featuresmyRett Trial Finder.
- Rett Syndrome Registry™ This database collects clinical data and caregiver reported information.
- Rett Syndrome Center of Excellence Network This network includes 15 Rett clinics across the U.S. that are dedicated to providing best-in-class clinical care for Rett syndrome patients.
WE ARE SUPPORTING FAMILIES WITH PRACTICAL RESOURCES, EDUCATION, AND CONNECTION WITH OTHERS WHO ARE LIVING WITH RETT.
No family should have to walk this journey alone.
And with your help, we can move the needle more. More resources to families and more research that leads to better treatments and, hopefully, one day, a cure.
So join us by raising awareness online, sporting your swag, and giving to help our Rett community.
Together, we go farther! Are you ALL IN for Rett?
We are the leading organization for Rett syndrome in the world, providing support to families in over 60 countries and accelerating research toward treatment and a cure for Rett.