Regional Associations

We are pleased to provide links to Rett syndrome associations and web sites within the U.S., who embrace our mission to accelerate research while supporting families and raising awareness.

Please contact admin@rettsyndrome.org if your organization is not listed or requires updated information.

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Around the United States:


Southeast Rett Syndrome Alliance	Rocky Mountain Rett Association (RMRA)
Midwest Rett Syndrome Foundation (MRSF)	Rett Syndrome Association of Illinois (RSAI)
New Jersey Rett Syndrome Association (NJRSA)	Rett Syndrome Association of Massachusetts
Northwest Rett Syndrome Foundation (NWRSF)

Rett Syndrome Related Disorders:


International Foundation for CDKL5 Research (IFCR)	MECP2 Duplication Syndrome
International FOXG1 Foundation

Press Releases

Regional Associations

Around the United States:

Rett Syndrome Related Disorders:

Ways to donate

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