Regional Associations

We are pleased to provide links to Rett syndrome associations and web sites within the U.S., who embrace our mission to accelerate research while supporting families and raising awareness.  

Please contact if your organization is not listed or requires updated information.

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Around the United States:

Southeast Rett Syndrome Alliance Rocky Mountain Rett Association (RMRA)
Midwest Rett Syndrome Foundation (MRSF) Rett Syndrome Association of Illinois (RSAI)
New Jersey Rett Syndrome Association (NJRSA) Rett Syndrome Association of Massachusetts                 
Northwest Rett Syndrome Foundation (NWRSF)  

Rett Syndrome Related Disorders:

International Foundation for CDKL5 Research (IFCR) MECP2 Duplication Syndrome                    
International FOXG1 Foundation