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You are not alone. 

Registering with IRSF takes only a few minutes. Upon receiving your registration, our Family & Community Engagement Manager, Samantha Brant, will reach out to you to connect you with resources and mail your Newly Diagnosed Rett Syndrome Toolkit (US addresses only). You can also reach her directly with questions on anything at [email protected] or (513) 494-8145.

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Please tell us a little bit about yourself:

Name*

Address*


Your relationship to the individual with Rett syndrome:*


Please tell us a little bit about your loved one with Rett syndrome:

Name*

Gender*

Date of Birth*

Have you received a clinical diagnosis of Rett syndrome?*


From time to time, we are asked about the demographics of the population we serve for reporting and funding purposes. Help us ensure the accessibility of our programs and services by answering the questions below:

Are you of Hispanic, Latino, or Spanish origin?

How would you best describe yourself? (Choose all that apply)


By clicking submit, you will receive periodic updates and communications from International Rett Syndrome Foundation.