New Diagnosis Form

We know how it feels to receive this diagnosis and we are here to help. Our staff at Rettsyndrome.org can help provide you with resources and connect you with our Family Empowerment team.

The Family Empowerment team is comprised of parents who are committed to help you on this journey. Register below or contact (mailto:sbrant@rettsyndrome.org) a member of our staff.



New User Registration
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Paige Nues, Director of Family Empowerment and mom to Katie, RTT R168X

“My goal is to help you find the same sense of inspiration, hope and purpose that both Katie and I wake up with every day, and to connect you with the people, tools and information to unlock the potential that I know lives within your child.” 

Samantha Brant, Family and Community Engagement Manager and mom to Macy, RTT

“ Macy has and will continue to be the backbone to our family that we never knew we needed. She truly is the pivotal change in my life that brought me to my passion...this position!” 

 


Send an email to connect with a member of our Family Empowerment Team.