Mississippi Resources

Family Empowerment Representatives | Treatment and Research Centers | MS State Agencies | Parent Recommendations


Family Empowerment Representatives


Family Empowerment Representatives are volunteers who provide emotional support, information and resources to families affected by Rett syndrome.  Contacting them should be your first step.

Brittney Gibson, Rettsyndrome.org  bgibson@rettsyndrome.org  1-800-818-7388

Misty Newman, volunteer Family Empowerment Representative, mistylane78@gmail.com 1-601-754-4096 


Treatment and Research Centers

Clinics & Clinical Trials - none at this time


 State Agencies - Mississippi


Local Service Agencies

Children's Medical Program (CMP) 

The MSDH Children's Medical Program provides family-centered care coordination services for children and youth( up to age 21) with special health care needs (CYSHCN).  CMP will work with you and your health providers to arrange and organize services, as well as, identify needs and resources to improve the health and well-being of your child.

Applying for CMP

1-800-844-0898

Beginning January 2016, an Intake Assessment replaces the CMP application. Intake Assessments can be completed by phone in the MSDH Central office or at a county health department.

County Health Departments

Family 2 Family Health Information and Education Center (MS F2F)

1-866-883-4474

The Mississippi Family 2 Family Health Information and Education Center (MS F2F) is a family-focused, family-managed program that works to empower the families of children and youth with special health care needs (CYSHCN) to be partners in the decisions made concerning the health of their children.  For more information, contact Parent Consultant Keishawna Smith at ksmith@ihl.state.ms.us 

Disability Determination Services (DDS)

1-800-962-2230

Disability Determination Services (DDS) is an agency in the Mississippi Department of Rehabilitation Services (MDRS) which operates in a partnership with the Social Security Administration (SSA) to make disability decisions on Social Security and Supplemental Security Income disability claims.  This office handles claims from all 23 SSA offices in Mississippi. 

Mississippi Disability Resources

Mississippi Society For Disabilities

1-601-982-7051


Handicap Placard 

Mississippi Department of Revenue (DOR)

Mississippi Department of Revenue (DOR) issues handicap placards. To apply for a disabled tag and/or placard, you need to submit to your county Tax Collector a Mississippi Disabled Parking Application, Form 76-104. The application must be completed by your licensed physician or nurse practitioner. There is no additional fee required to obtain a Disabled License Plate or Placard. (All regular taxes and registration fees must be paid.) You must submit a new application when the image of the standard plate is changed, which is every 5 years. The statement must be dated within 90 days of your renewal application.

Local Tax Collector Offices

Disabled Parking Application


State Medicaid 

MS Medicaid Information

1-800-421-2408

Medicaid Office Locations 

Disabled Child Living at Home Waiver

The Disabled Child Living at Home (DCLH) or “Katie Beckett” group is a special eligibility category that allows certain disabled children who are residents of Mississippi with long-term disabilities or complex medical needs, living at home with their families, to obtain Mississippi Medicaid eligibility. Qualification is not based on a diagnosis or disability alone, but the child’s medically documented institutional level of care needs from the preceding 12 months.

Apply for DCLH 

1-800-421-2408

To Apply for DCLH, complete the Medicaid application form for aged, blind and disabled individuals. You can also call or visit your local Medicaid Regional Office. The Medicaid Regional Office will determine eligibility and will send you a notice with the agency’s decision. If denied, the decision can be appealed through a state level hearing process. 

Medicaid Regional Offices

Independent Living Waiver

1-844-822-4622

The Independent Living Waiver is a home and community-based waiver that provides services to beneficiaries who, but for the provision of such services would require the level of care found in a nursing facility.  Eligibility  is limited to individuals age 16 years old or older, who have severe orthopedic and/or neurological impairments. Individuals must also be medically stable and be able to express ideas and wants either verbally or nonverbally with caregivers, personal care attendants, case managers, or others involved in their care.  There is a waiting list for this waiver. 

Intellectual Disabilities/Developmental Disabilities Waiver

The ID/DD Waiver provides services to individuals who, but for the provision of home and community-based services, would require placement in an Intermediate Care Facility for Individuals with Intellectual Disabilities. Individuals in this program must qualify for one of the following eligibility categories: Supplemental Security Income (SSI), Temporary Assistance for Needy Families (TANF), Disabled Child Living at Home or Income up to 300% of the SSI federal benefit rate.

Department of Mental Health Regional Centers

To apply for the ID/DD Waiver, you must first apply at a Department of Mental Health Regional Center.

Mississippi Youth Programs Around the Clock (MYPAC)

Mississippi Youth Programs Around the Clock (MYPAC) is a home and community- based Medicaid program for children and youth with Serious Emotional Disturbance (SED), that follows the High Fidelity Wraparound process. MYPAC provides an array of services, as an alternative to traditional Psychiatric Residential Treatment Facilities (PRTF).  Wraparound is an all-inclusive planning process that is youth-guided and family-driven.


Early Intervention

First Steps EIP 

1-800-451-3903

If you have a child that is under three years old, First Steps may provide developmental services and other resources to help your child meet his or her maximum potential. Services provided include (but are not limited to): screenings, evaluations and assessments, Individualized Family Service Plans (IFSPs), Early Intervention services, and transition plans to preschool services. 

First Steps EIP Referral Form 

Anyone (i.e., parents, health care providers, childcare providers) can make a referral to Early Intervention. Healthcare providers who serve infants/toddlers from birth to age three are required by state and federal regulations to make referrals within seven days of determining that an infant/toddler is possibly in need of early intervention services.

First Steps Directory of Providers


Education  

Office of Special Education 

1-877-544-0408

The Office of Special Education is a service-oriented organization that seeks to improve the education experience for children with disabilities. 

Special Education District Supervisors


Conservatorship 

Mississippi Conservatorship Forms

 1-877-389-0141


Transition to Adult Services 

Special Education Secondary Transition


Parent Recommendations

If you have favorite resources to share with others, please email that information and your experience to areed@rettsyndrome.org


Medical Professionals

ClinicalTrials.gov  

This site has a comprehensive listing of clinical studies involving Rett Syndrome patients or families.


Therapy ( PT, OT, Speech, Hippotherapy and Aquatherapy) 

MSD K.I.D.S. Clinic

 1-601-982-7051

MSD licensed and certified therapists help remediate speech and language dysfunction.


Legal Resources 

The Arc of Mississippi 

The Arc of Mississippi works to include all children and adults with cognitive, intellectual, and developmental disabilities in every community.

Disability Rights Mississippi (DRMS) 

 1-800-962-2400

Disability Rights Mississippi (DRMS) is a private, non-profit corporation that protects and advocates for the rights of individuals with disabilities across the state of MS. DRMS has been providing advocacy services for almost thirty years, free of charge, to Mississippians with disabilities. DRMS is the only disability advocacy agency in MS that has attorneys on staff to pursue legal remedies if necessary.


Recreation


More Parent Recommendations 

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