Recent Blogs

Find stories from other families and employees for Rettsyndrome.org who are willing to share their wisdom, experiences, worry, and hope with you! Know that you are not alone in this journey and become a part of a community who is making strides towards finding a cure.

Our Research Delivers

Wednesday, March 14, 2018

Having recently joined Rettsyndrome.org, I am humbled and grateful for the opportunity to serve this very special community. My 30 years as a health care administrator has taught me that medical solutions to even the simplest condition can be complicated and challenging. For example, there are about 75 drugs to treat something as “simple” as … Read More

Rett Syndrome Gene Therapy: Understanding the Published Data

Wednesday, May 25, 2016

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