Find stories from other families and employees for Rettsyndrome.org who are willing to share their wisdom, experiences, worry, and hope with you! Know that you are not alone in this journey and become a part of a community who is making strides towards finding a cure.
As a foundation, we know that caring for a child with Rett can be challenging. Connecting to other families, identifying current research and therapies, and finding educational resources can empower, provide hope, and impact families living with Rett syndrome. That’s why we’ve created these educational opportunities for 2020—4 regional Ed Days and 12 RettEd Webcasts—that … Read More
A Note from Chief Science Officer Dr. Dominique Pichard I am thrilled to be joining Rettsyndrome.org as the Chief Science Officer. Rett syndrome is near and dear to me and my family, as our oldest daughter, Catalina, has Rett syndrome. We received Catalina’s diagnosis when I was still in my medical residency training, and ultimately … Read More
— Becky Sher Molly Prichard jokes that she and best friend Jill Black met “online dating.” And to hear them talk about their fast friendship does sound like a conversation about Internet matchmaking — they mention instant connections, plans to meet in person after finding each other online, and even family members’ concerns that the … Read More