Recent Blogs

Find stories from other families and employees for Rettsyndrome.org who are willing to share their wisdom, experiences, worry, and hope with you! Know that you are not alone in this journey and become a part of a community who is making strides towards finding a cure.

Child looking at Tobii

NEW Resources to Empower & Equip You During COVID-19

Friday, April 17, 2020

Rettsyndrome.org has just released these resources to support families who are confined to their homes We know that the shelter-in-place guidelines are especially challenging for our families caring for a loved one with Rett syndrome. Many therapies have been stopped or are being done in an abbreviated version so that gained ground is not lost. … Read More

Woman speaking into mic

Knowledge is Power

Monday, January 27, 2020

As a foundation, we know that caring for a child with Rett can be challenging. Connecting to other families, identifying current research and therapies, and finding educational resources can empower, provide hope, and impact families living with Rett syndrome. That’s why we’ve created these educational opportunities for 2020—4 regional Ed Days and 12 RettEd Webcasts—that … Read More

Chief Science Officer Dr. Dominique Pichard

A Note from Chief Science Officer Dr. Dominique Pichard

Tuesday, November 12, 2019

A Note from Chief Science Officer Dr. Dominique Pichard I am thrilled to be joining Rettsyndrome.org as the Chief Science Officer. Rett syndrome is near and dear to me and my family, as our oldest daughter, Catalina, has Rett syndrome. We received Catalina’s diagnosis when I was still in my medical residency training, and ultimately … Read More