Primary Care Guidelines

Rett Syndrome Primary Care Guidelines

Learn how you can empower your care team to provide the best quality care for your loved one with Rett syndrome. Dr. Tim Benke from Colorado Children’s Hospital, Katie Hale, NP from Katie’s Clinic at UCSF Oakland, and Melissa Kennedy, Executive Director at, unpack the Rett Syndrome Primary Care Guidelines.

You’ll learn how to use this evidence-based tool in partnership with your child’s physicians and specialists. The Primary Care Guidelines provides suggested visit schedules by clinical area of assessment, specific concerns to look for, and timelines for follow up appointments.

Primary Care Guidelines

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BMJ Multisystem Comorbidities In RTT Sept 2020

BMJ Consensus Guidelines Sept 2020

References Harmonized PCG RTT And BMJ Published Articles Jan 2021

View all upcoming webinar topics and access past RettEd webcast recordings.