Connect with Others - Facebook Networks

 

Dads Network

As a dad to a Rett Angel, you are one of, if not the, most important person in your angel’s life. Your child loves you and needs you. This network is a primarily email based community that will strive to help you understand Rett syndrome better as you cope the diagnosis and your child. This network also has a Facebook presence. Please register to be a part of the email community as well as connect with the Rettsyndrome.org Dads Network on Facebook to get the full experience.

 

Single Parents Network

This special interest group provides the support needed to understand and overcome the unique obstacles that having a child with Rett syndrome while being a single parent brings to a family. This network, led by Regional Representative Lisa Rushin, will strive to help you in times of question or need as you face Rett syndrome as a single parent. It will be a forum for camaraderie, compassion and understanding amongst parents with similar situations. This group is primarily facilitated on Facebook. Please register with Rettsyndrome.org as well as connect with the Single Parents Network on Facebook.

 

Life After Rett Network

Many parents and family members that have lost a loved one with Rett syndrome have asked Rettsyndrome.org to provide a bridge to others who understand; to provide a place to share feelings of grief and loss, and to share strategies for coping, healing, and staying involved with the Rett community in a meaningful way. In response, we have created a private Facebook group named the Life After Rett Network. We invite you to join. Please register with IRSF as well as connect with the Life After Rett Network on Facebook.

 

Grandparents Network

Grandparents are such special people to begin with. However, a grandparent to a Rett Angel is even more special. These children (and your children) love you and need you. Even if you are not close-by in proximity, you can be in spirit by showing your love, care and concern. This network is a primarily email based community that will strive to help you understand Rett syndrome better as well as how you can help your children cope with their diagnosed child. Grandparents Network on Facebook

IEP Advocacy and Support on Facebook

Rettsyndrome.org Communication and Device Information Exchange on Facebook 

Siblings Network on Facebook