For Families

What is Rett syndrome?

Rett syndrome is a complex disorder and finding trusted information is an important first step.

 

Read more about Rett syndrome

 

Do you have a specific question? Read our Rett syndrome FAQs

 

Newly diagnosed?

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Life with Rett syndrome

We've assembled information from the experts about medical concerns often seen in Rett syndrome. Some of the common medical concerns for families include:

Clinics

These clinics understand diagnostic criteria and are dedicated to providing excellent medical care and consultation.

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Growth and nutrition

Information from the experts about medical concerns often seen in Rett syndrome.

Growth references

Epilepsy

Information from the experts about medical concerns often seen in Rett syndrome.

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Anxiety and behaviors

Information from the experts about medical concerns often seen in Rett syndrome.

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More about symptom management